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  #1   ^
Old Mon, Nov-08-10, 23:16
Swtmelissa's Avatar
Swtmelissa Swtmelissa is offline
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Posts: 80
 
Plan: Low Carb
Stats: 173/150/145 Female 5' 7'
BF:34/28.8/25
Progress: 82%
Location: The OC, California
Default Newbie, tumors, partial thyroidectomy hypothyroid needing help before first Dr. Appt.

Hello Everybody,

This forum has been so interesting to read. I am a totally uneducated on treating thyroid problems and need to start educating myself!

Let me first give you my history. 2 years ago during 1st pregnancy, by enlarged thyroid was discovered by a nurse (may have saved my life). Long story short after many specialists it was discovered that I had some very large tumors and nodules all over my thyroid and was hyperthyroid. After my pregnancy they went in to remove most. I had a lemon sized tumor on my thyroid with other tumors attached to it! My surgeon at City of Hope Cancer Hospital in LA said it was the largest he'd seen and they had not turned cancerous although if not caught may have. All benign. They removed half of my thyroid. Still have some small nodules that are left on the remaining side that they keep on eye on.

4 months post op the surgeon who is still doing my follow up. said that although my thyroid levels were a little low, they weren't so low that it would do any harm to me so he was going to leave it up to me if I thought I needed thyroid medication. I told him since I was feeling fine, not too tired etc. I'd hold off. I didn't want to start something I'd have to continue forever if I didn't need to. I'm sorry to report I have no idea what my numbers were (I told you I was uneducated, I know to get a copy of the results now). He said if I took the medication I'd have to do frequent follow up visits to him and the hospital is 1.5 hrs from me and w/ a 1 year old seemed like a big inconvenience.

Since then my energy levels have been ok but I'm cold alot (always have a temp of about 96 degrees) and now have started following the CALP program (low carb all day except for dinner where I get 1 serving of carbs) along with exercise (Jillian Michael's high intensity interval training 20 minutes a day/6x week) and my weight loss has painfully slow. I'm thinking it may be time to get my levels tested again and I plan to do so seeing a local endocrinologist to monitor me and perhaps get the medication if it seems appropriate. My question is what do I need to know before seeing the endo for the first time? It seems I should be prepared to fight for Armour's if needed right? I much prefer a natural method (I eat sustainably, organically, prefer natural therapies etc.) I also would love an opinion on if my levels are only a lil low would it be the smarter thing to still avoid medication since I feel ok and just be prepared to battle twice as hard to lose weight. If that's the best thing to do I'm fine with it.

Sorry to be so vague, I just would love a lil direction before I end up in the doctor's office with some syntroid and a lifetime commitment when I don't really know all my options.

Thanks sooooo much for any input!!

Melissa
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  #2   ^
Old Tue, Nov-09-10, 11:03
Mrs. Skip's Avatar
Mrs. Skip Mrs. Skip is offline
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I am currently on a compounded version of T3 and T4, so Armour is not your only option.

Your thyroid level regulates a bunch of stuff in your body, so it's good to have it within normal limits. However, it seems to me that people feel their best at slightly different levels within the normal range--some near the higher limit, some near the lower limit, and so on--so I would use how you feel as part of finding the correct dosage for you. If your dr. thinks your levels are pretty close to normal, and you are feeling fine, and you really don't want to have to take anything, then maybe you should wait until you feel the need for it. Although some people might argue with my opinion, I think that once I started on the thyroid meds, my own body stopped making its own. JMHO, of course.

Good luck with whatever you decide to do.
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  #3   ^
Old Tue, Nov-09-10, 13:10
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Nancy LC Nancy LC is offline
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Plan: DDF
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Quote:
He said if I took the medication I'd have to do frequent follow up visits to him and the hospital is 1.5 hrs from me and w/ a 1 year old seemed like a big inconvenience.

You can get thyroid tests from any doctor. You don't have to drive that far to do it. At first to get your levels right you might need to test every 6-8 weeks. But after you get a good dose, testing once or twice a year is fine.

Be prepared to lose your fight for armour. Most doctors are very ignorant that patients feel better when they get some T3, or they don't care.

You can argue for it, and you should, but if you don't get it you can always go see an ND (naturopathic doctor). They're generally easy to find in CA and most will prescribe natural thyroid.
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  #4   ^
Old Tue, Nov-09-10, 13:57
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MoonDansyr MoonDansyr is offline
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Plan: LCHF/Keto
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Location: Kentuckiana
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I highly recommend you go to thyroidabout dot com and start reading. They have a long list of symptoms to check for. Symptoms can creep up on you so that you don't necessarily realize what is happening until things get pretty bad. For me, I started having symptoms in 2000 and my TSH was 3-something. The doc saw that it was "in range" and dismissed my symptoms. Over the next four years, my symptoms kept worsening. We had moved and I began seeing a new doctor and when I presented with my old plus new symptoms, he surmised it was my thyroid, ran tests and said I was in range, so "That couldn't be it." Then I happened onto a magazine article that changed everything for me. I learned that "in range" is bunk and the American Thyroid Association has been trying to change the range for some time. I presented that info to my doc and he threw it in the trash and said, "that's not what's wrong with you - - here - take some anti-depressants." (I had not said I was depressed and didn't feel depressed, although that can sometimes be a symptom.) I took one pill and felt suicidal (before black box warnings came out) and threw the rest away. I knew I wasn't depressed. At that point, my symptoms were really getting bad. I began seeing doctor after doctor in my area and all of them came to the same conclusion, that nothing was wrong with me, even though by this point, I had every single textbook symptom EXCEPT depression (just frustration over idiot doctors). My TSH was 5.4 by this point. I went to the above mentioned website and began researching, as I thought I might have to start treating myself. There's a link on there somewhere for finding knowledgeable doctors in your area. I found one and it took me 2-3 months to get in, but he completely turned my life around for me. He was an ENT and has Hashimoto's disease and he went through the whole ridiculousness of ignorance of what is taught in today's medical schools. It's not just about TSH, it's also about T4, T3, Free T4, Free T3, Reverse T4, Reverse T3 and their ratios to one another. He was so comforting to me on my first visit, I cried! Come to find out, I needed T3 because my body wasn't properly converting my T4. Therefore, Synthroid, the most prescribed thyroid drug that 99% of doctors think is the only thing anyone ever needs, probably wouldn't have helped me much ... or it would have sent my T4's through the roof to get my T3 where it needed to be.

Remember, doctors aren't gods, they just sometimes think they are. I asked my doctor why so many doctors are so clueless and he responded with: "What do you call a medical student who graduates at the bottom of their class?" I shrugged. He said, "Doctor." But not only that - many doctors just want to get a paycheck like a lot of "employees" today ... not necessarily doing the best job they can do.

Having lost most of your thyroid, I would venture to say all your T4s and T3s are out of whack and you probably, at the very least, need Armour, but a really good doctor would most likely compound something for you that would be specifically for your needs.

My most noticeable symptoms: internal lump in my throat (that I feel when I swallow), iron anemia, intolerant of hot weather or cold weather, hair loss, dry skin (feet, knees, ankles and elbows will crack), dry eyes (especially upon waking), fast weight gain, even when dieting and exercising, puffy face and eyelids, fatigue, muscle aches, joint pain, and "brain fog" (not being able to think of simple words, forgetting what you went into a room for, having trouble concentrating or problem solving).

A final word: I saw an endocrinologist and an ENT when I was in search of a "good" doctor. Both of them were complete quacks. The endo told me I just needed to diet and exercise (before asking if I already was, and I was!), and the ENT told me I had acid reflux. I didn't. Don't settle for less than what your gut tells you is a doctor that truly knows their stuff. They are just people.
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  #5   ^
Old Wed, Nov-10-10, 14:33
Swtmelissa's Avatar
Swtmelissa Swtmelissa is offline
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Posts: 80
 
Plan: Low Carb
Stats: 173/150/145 Female 5' 7'
BF:34/28.8/25
Progress: 82%
Location: The OC, California
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Thank you so much everyone. I know I need to go get my levels checked to start with and then I can figure out what to do from there.
Moon - I too have had the periodic lump in my throat for weeks at a time. Interestingly I had it before my enlarged thyroid was discovered and went to a dr. about it but got no answers. Since halving the partial thyroidectomy I had what seemed like a sore throat lump for about about 3 weeks that wouldn't go away, called my surgeon and he said in his experience that has never been related to thyroid issues so not to worry about it. Maybe now I should. I also am very hot/cold weather intolerant and am doing everything I possible can to lose weight and am getting such frustrating results. Overall I've felt just fine so I'm hesitant to start on this journey of treatment but I think I need to at least make the initial steps to find out what's going on with me. I'm definitely going to check that website and see if I can't find a good doctor around here.

P.S. Despite feeling totally normal this last year, this last few weeks I've been fighting what I feel like are cold symptoms, scratchy throat, fatigued etc. but it never turns into anything. I've been treating it with lots of Vitamin C, echinacea, D3, grapefruit seed extract and haven't gotten sick but am now questioning if it's actually thyroid related.

Thanks for all the input!
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