Siobhan Huggins, who works with Dave Feldman in the citizen science/lipidology realm, has lipedema. She's looking fabulous, though, and has had a lot of success with what I think is a mostly carnivore/high fat approach. Check out her before/after pics.

She did a really nice presentation on lipedema back in the summer, but I don't have a link. It's probably behind a paywall by now; it was one of those online conferences.

It would be great if, like in her case, more patients got diagnosed at a young age rather than once it's too late to avoid the progression.

That whole twitter thread, BTW, is wholesome content. Dr Tro started it soliciting success stories with before/after pics.