I've had PCOS since puberty, around 22 years worth. It took 15 years, endless different gynecologists, expensive tests, and journals full of heartbreak before my condition was finally labelled as Poly Cystic Ovarian Syndrome. My miracle breakthrough came upon visiting an infertility endocrinologist. You see, it's not just the hundreds of tiny cysts (visaible on ultrasound), but what those cysts do to your hormone imbalance that causes more medical problems that can be imagined. Here is just a capsule of "what symptoms I have". I've been labelled with Chronic Fatique Syndrome because of the continual burden of 'never enough energy' and the absolute necessity of an afternoon nap. I have a confirmed diagnosis from a rheumatologist of Fibromyalgia because of recurrent , sufferable aches and pains and dreadful insomnia. Years of physical therapy have only produced temporary relief. And just last week after 2 months of tragic headaches and a "primary care" physician labelling me 'psychotic', do I have a conclusive diagnosis from an endocrinologist that I have severe reactive hypoglycemia. My insulin peaks were incredible also allowing an additional diagnosis of "very" glucose intolerant. Little was ever mentioned regarding diet through the multitude of physicians and specialists I endured. I am on Metformin to help with the glucose intolerance and"LOESTRIN" birth control pill to regulate my cycles. EVERY FEMALE with PCOS should be aware that BP's with higer doses of ESTROGEN can cause earth shattering Irritable Bowel Syndrome. Just switching to a lower estrogen pill can help IBS, mine disappeared immediately after 2 years. I'm kind of rambling on here, but my thoughts on a possible connection to your endo...problems, might be worth persuing. If nothing else keep Low Carbing. Carbs might just be your evil potion. They sure have crushed a lot of my life away. Take control! Be persistant and by all means never stop asking questions.
Packrat