I may be on to something here .......

[Jen B]

I have had fibromyalgia symptoms and fatigue for about 14 years, and it has gotten worse and worse over time. No therapy I've ever tried has ever touched my pain and fatigue, or made any difference in the progression of this disease. And I have tried endless dietary approaches, endless supplementation, two kinds of allergy testing, several types of chiropractic, electrical stimulation treatment, homeopathy, Bowen therapy, Reiki, foot reflexology, Rolfing, hypnosis, and exercise. Eating low carb is certainly helping many aspects of my health, and I am committed to LC for life, but as far as easing my pain or helping with this disease, it has done nothing.

Many years ago, I got a very strong feeling that something had invaded my body. That feeling has persisted to this day, but I was never able to figure out what may have invaded me. Doctors certainly didn't have a clue, and simply wanted to give me pain medication and other pharmaceuticals, which I refuse. I don't need band-aids; I want a cure!

I have recently come across information on the net that supports the notion that fibromyalgia, chronic fatigue, and a whole list of other ailments are caused by mycoplasmal infection. An infection! A long-term, progressive, undetected infection! Mycoplasmas are known as stealth pathogens and are not readily apparent. When I read this information for the first time, a light bulb came on in my head. Somewhere deep inside me, I somehow knew that this was the bit of information that I have been searching for all these years. This must be the reason that nothing has worked. The reason I had felt that my body had been invaded is because it had!

http://www.rain-tree.com/fibromyalgia.htm

The link above is just one of the many articles I've read that makes absolute sense, and makes this concept very clear. The first page is rather technical and hard to get through, but the links below the first paragraph present informaton that is easier to understand.

The treatment protocol suggested for elimination of mycoplasma pathogens seems to be rotating long-term cycles of pharmaceutical antibiotics. Now, I am one of those people that believe that pharmaceutical antibiotics are dangerous and not even that effective. Each type of antibiotic only reaches a few pathogens, and then in no time, those pathogens become immune to the antibiotic. And the side effects are atrocious!

I believe that there are antibiotics in nature that are much more user friendly and actually work. Oregano oil is one, and it is excellent with any form of virus. But mycoplasmas are not a virus, and I'm not sure that oil of oregano would get through to these deep stealth pathogens. What I have found that may work is colloidal silver. Colloidal silver is known to kill about 650 types of bacteria, and never has an immunity by any of them been noted.

But not just any colloidal silver will do. It has to be very tiny particles of silver. I won't go into great detail about colloidal silver here. There's plenty of information on the net. There's also lots of scare tactics and propaganda put out there too by the FDA and other agencies that are watchdogs for the pharmaceutical industry, and are doing their best to keep the secret of the effectiveness of colloidal silver from becoming known in the public domain.

I'll just cut to the chase here. I have purchased a colloidal silver generator that produces a product with 10-12 parts per million of silver suspended in distilled water. The particle size is as small as .0008 microns, which is the smallest I've seen in any product anywhere, and is supposedly the size that is effective at seeking out and killing the mycoplasma stealth pathogens.

Yesterday, I began my experiment. I'm ingesting 8 ounces per day, which is a fairly large dosage. (The normal supplement or "maintenance" dose of colloidal silver would be 1 tsp. per day or every couple days.) I'm holding each gulp under my tongue for the best sublingual absorption, and ingesting it on an empty stomach throughout the day, even away from any water drinking.

I just wanted to post this thread, because I plan on updating my results as time goes on. It may take a month or so to see any results. I also thought that there might be others who would benefit from the information about the suspected infectious nature not only of Fibromyalgia, but of conditions such as Arthritis, Gulf War Syndrome, Chronic Fatigue Syndrome, Lupus, AIDS/HIV, autoimmune diseases, ALS, psoriasis and Scleroderma, Crohn's and IBS, cancer, endocrine disorders, Multiple Sclerosis, and diabetes.

There's also information about this recently in my journal.

[wcollier]

Should be interesting to see your results.

My Fibro is in complete remission since I got my thyroid and adrenal hormones in check (even though my lab results showed "normal"). I was one of the lucky ones, although it took a lot of persistance.

All the best.....

[Gailew]

Interesting...I was tested for mycoplasma infection and am getting the results tomorrow. I don't know what the ND will suggest if I test positive. Like you, I've also tried many things thru the years. I remember trying colloidal silver a couple of years ago and didn't get a reaction, but then I never took as much per day as you're trying. I'll be interested in watching your experiment and hope you have success.

[Jen B]

The following link gives lots of information about colloidal silver, more than any other site I've found. The site is, of course, presenting their own brand, but the general information presented is pretty thorough.

http://alchemistsworkshop.com/_wsn/page3.html

[Dreamy1]

Hi Jen.very interesting reading and somewhere( cant rememeber who it was ) I have heard people talking about the same thing. I will be very interested to hear how you go. I have two friends who have 'fibro' quite bad also. Good luck

[awaldron]

HI Jen,

wow, thatis very interesting. I hope this works for you. Please post your results and let us know how it goes!

--Andie

[Micha2]

Hi Jen

I have had fibro for at least 4 years and i am now under investigation for Lyme Disease which is caused by bacteria called Borrelia (another stealth pathogen).

I have sent blood samples off to the Bowen lab in the US and to another one in Germany, as I think I got bitten there. The German lab test has come back positive. The treatment: antibiotics.

Like you I felt as if something invaded my body when I first got ill but all the usual blood tests were negative. It was only when a friend of mine got back in touch with me after many years who had Lyme Disease, and after comparing symptoms, they were almost identical.

I believe that there are different causes for fibro and I am very hopeful that I have found mine. I will go ahead with antibiotics if my doctor offers them. For the past few weeks I have been taking a herb called Samento (Cat's claw) which has antimicrobial properties. There is lots of info (negative, as it has to be treated with caution, it is very powerful, and positive) on the net about it. There is also a salt/vit c protocol that I am looking into but I am not sure about it yet.

You are definitely onto something!

Good luck and best wishes

Michaela

[Ruralgurl]

Hi Jen
Very interesting !
I looked up your link for the colloidal silver and they want 26.00 for 4oz's. That is very expensive if you are taking 8 oz a day?
Are you taking it some other way (less expensive)?
I am going to do further reading but you have really tweaked my curiosity. Thanks

[Jen B]

http://www.silveredgehealth.com/index.html

I bought the micro-particle generator at the site above. It's no. 5 on the list. This is the only machine I found that makes this small of a particle at home. Making it myself is the only way I can afford to do this in the quantities that I think may be necessary.

[Jen B]

UPDATE:

My aggressive approach with a high dose of colloidal silver (CS) was delayed because the generator I purchased had a problem and I had to return it. I got a new generator Friday and yesterday was my first day of taking 8 ounces of colloidal silver water with 4 drops of H2O2 (see below).

In the meantime, I was reading about a woman that has cured herself of multiple sclerosis using CS. It took 2 years for her to cure herself, and absence of the disease has been confirmed by MRI. Her name is Nancy Delise, and she has explained through journaling how she improved, what it felt like, how much CS she took, different milestones along the way, etc. (If you type her name in the browser, you'll find information about her.) She had found out that her MS was caused by mycoplasmal infection, the same thing that is suspected in AIDS, Chronic Fatigue, Fibromyalgia, Arthritis, etc.

Nancy started out doing 16 oz of silver water per day. She said that it took about 3 weeks on a high dosage of CS before she began to see improvement in some of her symptoms. She talks of having a lot of pain and discomfort during the mycoplasmal die-off phases. This process can take a while. She said on week 12: "I feel like a caterpillar in a cocoon. I wonder if they have pain during the metamorphosis." She was apparently still feeling pain then, but felt like she was going through a metamorphosis - a very positive sign indeed.

After 1-1/2 years, she came across some research and found out that adding a drop of hydrogen peroxide (H202) per each 2 oz of CS helped break down the silver particles more and allowed them to penetrate to the level needed more effectively and quicker. She said if she had known about this earlier, her recovery time would have increased a great deal. (I just happen to have some food grade H202 in the freezer, and I am adding 4 drops to my 8 oz daily dosage. This is the 35% H202, not the kind in the medicine cabinet.)

I had a strange night last night. I woke up with a nauseaus feeling and a lot more body pain than usual, even in my arms and other places where I'm not used to feeling it. I was cold and then hot, breaking out in a sweat, and then getting cold again, almost like I had a fever. After I got up this morning, I had some severe diarrhea. I've been in bed all day with nausea, pain, and just feeling generally crappy.

I think my aggressive approach with CS yesterday has caused some die-off activity. The die-off of bacteria is supposed to magnify symptoms for a while, creating more pain than usual. The nausea and diarrhea has me thinkng that maybe there's some candida overgrowth dying off too. I actually welcome die-off pain and symptoms, because I'm really wanting what is on the other side of this.

Needless to say, I'm feeling like things are happening, and I'm excited and intrigued. I'll post further experience.

[MrMoose]

I will be watching with interest Jen. You have been through a lot. You are goinging to be one tough cookie in the end! Continuing to remember you in my prayers.

mike

[Jen B]

Thanks, Mike! You're right about me being a tough cookie!

This is day 11 of my aggressive CS approach. The die off activity went away, and now my pain is sort of moving around more, and it's more 'sore' than the usual dull ache. There are changes occurring, but I don't know how to qualify or quantify it yet.

I can't be impatient. I have had this condition for a very long time. It will probably take some time to see any blatant results. I am optimistic and my intention is strong. I think my mental state has a lot to do with my progress.

[Jen B]

Well, guess what! I had a muscle testing session with an alternative healer the other day, and he confirmed that I do not have any mycoplasmal infection or any stealth virus in my body. He did, however, say that I have an overgrowth of candida yeast in my intestines.

My approach using the colloidal silver is still sound, and it is supposed to kill off the yeast. I've added oil of oregano (Oreganol super strength), 3 drops under the tongue twice per day. This combo seems to be kicking a$$, as my die-off symptoms are getting pretty intense. I've also made all the dietary adjustments to cut out anything that would feed yeast, and I've added a cup of Stoneyfield plain yogurt per day. I'll start making my own yogurt soon.

[Dreamy1]

Hello there Jen.just checking in again to see bow you are doing.it's been awhile since you posted on this thread. We are all keen to hear how you are. :)
Pamela :wave:

[skeeweeaka]

I don't know if you are aware but coconut oil is also a strong antifungal.... I just started using it myself for yeast... Keep us updated... I just started the oil or organo today...that stuff is strong...liquid...constant burning...let's see how I feel tomorrow...

[Jen B]

I've been doing an aggressive anti-candida approach for about a month now. The extreme die-off lasted about 2 weeks and I felt like absolute cr*p! Then I seemed to come out of the woods and be among the living again! Now it's occasional, milder die-off, but mostly feeling balanced and good.

It's amazing to me that all my body pain all these years could have been candida taking up residence in my muscles and joints. It may take some time to get it all moving out and to have some significant relief, but I believe it's happening. Things are looking up for me. Not in a huge way, but definitely some noticeable improvement. I'm sleeping like a baby, which is something I haven't done for years and years. My pain is less and my energy is better now.

I upped the OoO to 10 drops/day in two doses. I'm using the Oreganol Super Strength drops, mind you ... this stuff is ultra potent! I have also been using coconut oil, anywhere up to 3 T per day. Today I crushed a clove of garlic and swallowed it in pieces with water like pills. Not too bad. And soon afterwards, my tummy was rumbling and churning. More candida biting the dust! Think I'll keep up the garlic.

I dropped the yogurt, as dairy was making me feel worse. My diet is almost zero carbs now. Moderate protein and plenty of fat. The only plant food I eat is live raw cultured veggies. I've got my fat intake over 75%, my protein about 20%, and the only carbs are from the cultured veggies. This diet for me is a godsend. Not only is my energy up, my sleep is sound, and my pain is lessening, but my mood is elevated and balanced as well, something that's usually all over the map!

My cravings are nil, and my hunger is very manageable. I've only lost 2 lbs over the last month - kind of on a plateau - but that's OK. I think I'll be dropping some more poundage soon!

I'm making my own cultured veggies in a fermenting crock, but in the meantime, am buying a brand from the HFS called "Rejuvenative Foods." These truly cultured veggies are just packed with healthy bacteria, and they are the only probiotic I use. If interested, I started a thread called "cultured veggies" in the candida forum. The Live Salsa and the Kim Chee are awesome!

[MrMoose]

Great news Jen!!!

mike

[skeeweeaka]

Update, after three days of using these products, my energy levels are through the roof. This coming from someone who has been practically bedridden for six years... I cannot tell you the thoughts that are going through my mind... What on earth has been wrong with me that coconut oil and oregano oil are repairing it... I have noticed that the yeast in my urine is much better...not as much bubbling going on... Could all of this have been yeast related...

[Zuleikaa]

... Could all of this have been yeast related...That and vitamin D deficiency.

[Jen B]

Skeeweeaka,

Congratulations on your new-found energy! CO and OoO are both potent anti-fungals. It is estimated that 75-80% of Americans have an overgrowth of candida. Maybe you're onto something here! Good luck!

[burchets]

Very interesting post! I have used different supplements over the years and have added a few recently. I also use colloidal silver, but I'm not dilligent enought to make my own. The quality makes a huge difference! I now use Sovereign Silver and it has put the bladder disease I have into remission. I have chronic fatigue syndrome and interstitial cystitis plus a few other health probs. Besides the colloidal silver, I use sparx formula, which was invented by David W. Gregg and is sold by Krysalis.net. I have spoken with the inventor on the phone for around an hour. He is a retired nuclear physicist (AKA rocket scientist) who researches diseases and tries to find cures. The formula has given me back some energy, eases the fibromyalgia, and has made my hair grow long. If you look at my pic. you will see my hair is very healthy. It wasn't always like that. For a long time, it was thin, dry, and falling out. When I'm in pain, I take msm and malic acid with good results. I know the malic acid somehow rids the muscles of the lactic acid that is built up in them, which people with fibromyalgia have a problem with because whatever has invaded the cells has messed up the oxygen metabolism of the bodies cellular system and how they utilize the oxygen. I take yeast fighters, and my recent re-dedication to the atkin's diet has eliminated a lot of my problems with fighting yeast infections. I'm not completely healed, as I write this my arms and shoulders ache, but I can function and I believe that eventually I might be 90% better than when I first got sick. Good luck with your experiment.

[iteachla]

Can you please guide me to the link about the vitamins you dissolve in juice. Thanks...

[Yakumo]

Yip, you guys are all onto something. I have been suffering from CFS and auto-immune conditions for a long time now. Hashimoto's disease and a mild form of IBD + leaky gut. It is quite true that many such autoimmune conditions including your fibromylgia and my hashimotos (and also rheumatoid arthritis etc. etc.) have links to chronic infections. Candida is a common one, but so is Rickettsia. Check out http://www.chronicfatiguesyndrome.tv/whatiscsf.htm

That's the website of my one doctor, Dr. Jadin who figured (after VERY expensive blood tests) that I have parasite infections in addition to the Candida. She actually reckons Candida is my secondary problem, just taking advantage. But I'm not so sure. I've had Candida for a while and it really causes me trouble.

This is also why people with IBD find relief on the Specific Carbohydrate Diet and why many people with auto-immune conditions (I think) respond favourably to fasting. Amazing the trouble these microbes cause!

In my case, I have Candida overgrowth and was recently diagnosed with Rickettsia and Chlymadia parasites as well. However, the antibiotic therpay to kill the parasites makes the candida worse and my bowel flora are all dead now (lactulose does nothing to me...). I'm going to try supplementing with reuteri and EM cultue (if I can get it) to replace the flora. I used to be into cultured veggies, but lately my stomach can't tolerate it.

I find the candida exceedingly difficult to get rid of. I often eat a LOT of coconut oil in a day (it is one of my primary fat sources) and have never experienced any die off or anything. I tried OoO once, but it didn't seem to provide me with any benefit. I know my sister tried to use it topically for a skin fungal infection and it did nothing. Colloidal silver works well topically, but I have doubts about its ability to make headway in the intestines. I'm interested to know that OoO worked for u guys. Maybe I should give it another chance, except that I don't have much left and you can't buy it in this country (I imported the last batch). I've tried lots of garlic, but it hurts my (rather sensitive) stomach lining. I'm planning on actually using some hardcore prescription antifungals (which are actually fungistatic) and taking lots of grapefruit seed extract and berberine while eating <almost> no carbs. I still have some low carb veggies, but not too much, and some nuts and seeds. I find that nuts and seeds don't seem to make my problems worse, but carbs do!

I think your diet sounds like a good anti-candida strategy. I made the mistake once of eating too much meat on an anti-candida diet and it actually messed up my bowels.

I know what it's like to suffer with these sorts of things. At one point, I had to take a 3 month sabbatical I was so messed up. At least now I can do a full days work. There was a time when all I wanted to do was sleep all the time and I had no patience for anyone or anything and no desire to see friends etc.

Good luck to you all! And I wish you success in treating your symptoms. Cultured veggies are a great idea. I tried making them, but it all went rotten. I sure love sauerkraut though! Mmmm. I tried kefir too (love it) but it makes me sick. I'm going to try EM-1 if I can get my hands on it.

Don't u guys often feel though like other people just don't get it? The symptoms are so vague, and too many people (including doctors) think you are either mentally ill, or you just need to "take a hold of yourself" or something.

[Nancy LC]

Just concerned because I was reading up on taking silver internally. It can cause a very disfiguring condition called
Argyria that mottles the skin a dark grey color.

You might want to read up on it before persuing this treatment: http://www.together.net/~rjstan/

http://www.together.net/~rjstan/rose1.jpg

[Yakumo]

I've read in many placed that Argyria cannot happen with proper colloidal silver. Just don't buy from a dodgy company or some guy on the street. Lots of people make their own (it's very easy to make!) and drink the stuff by the gallon without any adverse effects.

I've tried colloidal silver, OoO, caprylic acid, everything - waste of my time.

Although, from what I've read on other threads, I was possibly just not taking enough OoO, so I'm going to give that another try.

[Nancy LC]

One of the Argyria victims I read about was making his own.

Be careful, someone might have to dip you in Tarn-Ex!

[burchets]

Again, I have been taking sovereign silver, a high quality silver for months and I have no fear of turning blue or grey. The woman up there, Rosemary, did not ingest colloidal silver, but a silver product that was discontinued in the 70's. Today millions of burn patients are treated with solvadine, which is made out of silver, to treat their burns and prevent infection. None of these people have turned blue. Countless numbers of people have ingested colloidal silver, and have not turned blue. I have done my homework. I drink it daily, and I'm not blue. Look at my picture. I'm not blue, but I am very WHITE. I really need a mystic tan bad! Colloidal silver has helped me with the pain of interstitial cystitis, and I don't believe it is dangerous unless it is improperly made and ingested. I don't make my own. I buy high quality expensive stuff. It is well worth it. I feel a lot better now that I have found the stuff. The governement wants the U.S. public to spend their money on their doctors and their drugs. I believe the Food and Drug Administration funds Quack Watch. With every drug there is going to be at least 1 person that suffers a side effect. Lipitor has been shown to cause various ailments and so has the pill, but still the U.S. public ignores the one in such person and take the drug anyway. Why should one blue lady scare me when there are so many others who ingest colloidal silver and are perfectly fine?

[Nancy LC]

You're lucky, Burchets, but if you imagine it makes a difference because you're taking some specific kind, think again.

Background: Argyria results from prolonged contact with or ingestion of silver salts. Argyria is characterized by gray to gray-black staining of the skin and mucous membranes produced by silver deposition. Silver may be deposited in the skin either from industrial exposure or as a result of medications containing silver salts.

The most common cause of argyria is mechanical impregnation of the skin by small silver particles in workers involved in silver mining, silver refining, silverware and metal alloy manufacturing, metallic films on glass and china, electroplating solutions, and photographic processing. Colloidal silver dietary supplements are marketed widely for cancer, AIDS, diabetes mellitus, and herpetic infections. Cases have followed the prolonged use of silver salts for the irrigation of urethral or nasal mucous membranes, in eye drops, wound dressing, and the excessive use of an oral smoking remedy containing silver acetate. Argyria has also been attributed to surgical and dental procedures (eg, silver amalgam-tattooing, silver sutures used in abdominal surgery). Blue macules have appeared at sites of acupuncture needles and silver earring sites. Great individual variability exists in the length of exposure and total dose needed to result in argyria.
http://www.emedicine.com/DERM/topic595.htm

[MrMoose]

Just want to point out that colloidal silver is not a silver salt. I am aware that cases have arisen where people have made it incorrectly using water that had salts either intentionally added or by use of tap water. Doing that would result in silver salts which is not a good thing. So it would seem that using pure water as directed would be a very good idea.

mike

[miristar]

Thanks for all the info and all the opinions! Since joining these forums and doing low carb I feel as though my brain is growing... all this info! It's so cool.

I don't know what I think about colloidal silver, yet, but Jen B I would like to hear how you are doing! And how low carb are you right now?

Thanks
Miriam

[VegGrrl]

Hi Jen,


I found the same research myself recently. Very interesting stuff indeed. My mom is actually just finishing up doing the Mycoplasma treatment for Interstitial Cystitis. It appears she's been helped tremendously, though she is not feeling so great, because she had Candida prior to going on the antibiotics, and though the doctor gave her Diflucan in conjunction, and later added some super-strong Pro-biotics (400 billion organisms per pill) it doesn't seem to have done enough.

I'm contemplating trying to treat the Mycoplasma as well, but the doctor I'm seeing who is willing to do it, I'm not sure the lab he's sending specimens to is going to be able to do it right. I'm supposed to see an infectious disease specialist, who is said to have been able to successfully culture bacteria from the stomach and bladder (quite a feat I guess) next month so maybe I'll wait till then. Maybe not.

How are you feeling at this point in your treatment? I'd love to know!

Also, to the person who was talking about hormones, I'd love to hear more & find out how exactly you fixed the hormone problem, how do you know you're at the right levels if the blood tests came up innacurate? I'm having the same problem. My blood tests came back okay a few months ago, but I KNEW I was having problems (adrenal burnout and out of whack sex hormones) so I started taking DHEA and it helped soooo much, at least with the Adrenal burnout symptoms...

Thanks everyone for sharing what is working for them!

[mollymom]

I am so glad to see so many people investigating alternative medicine. I blame the fact that I have fibro at all on two massive courses of IV antibiotics - 3 weeks each time of clyndamicin..the strongest on they have yet, followed by two weeks of oral.

Antibiotics are now listed as one of the top five known triggers for Fibro.

I had a bad spider bite on my neck that became infected. The trad, dr. wanted me to use...antibiotics. (56$) My alternative practitioner recommended colloidal silver ($6) be sprayed on site three times a day. Was gone in three days.

I am also on the course of trying to determine if I have a candida overgrowth. I have started using one container of Pro-Bio K per day...a fermented yogurt product that contains massive amounts of live culture. However, there is another school of thinking that says taking probiotics in pill form is better, as the pills have a special coating that doesn't dissolve until it reaches the intestines, thus protecting them from the acids in the stomach.

Just some of my experiences..am going to ask about oil of oregano!

[Kandra]

When I over-exert I often get a sore throat and the beginnings of a sinus infections. If I spray the CS into my nose several times a day it doesn't progress into the full blown sinus infections (which were chronic for years and years). If I've waited too long and the infection is worse I use a dropper and turn my head upside down and drop it into my nose. It hurts, but it only takes a couple of doses to get rid of the infection.

[RobinB]

My dh has fibro, and he went to a unique doctor a few years ago who treated it with long term antibiotics--to treat "infection"--and it worked, for a while. For about 2 years he felt much better, then the symptoms began to return.

[mollymom]

I am trying to avoid antibiotics of all kinds as I am convinced, having examined my history, that two long courses of antibiotics undergone to treat cellulits and then infection after surgery were the final TRIGGER to start the fibro syndrome. I strongly believe that fibro has a degree of autoimmune deficiency associated with it!

[NfldArtist]

colloidal silver was used years ago for rheumatoid arthritis. It may still be.

[Kandra]

My dh has fibro, and he went to a unique doctor a few years ago who treated it with long term antibiotics--to treat "infection"--and it worked, for a while. For about 2 years he felt much better, then the symptoms began to return.
Robin, has his dr put him back on the antibiotics or is he trying a more natural approach?
I over did it earlier this summer and ended up flat on my back. I'm still overwhelmed with the pain and fatigue these days. I know that I need to try something new. Thanks to all of you for your wonderful ideas. I'm going to spend some time checking out those links now. I wonder how the CS experiment went? I've never taken it internally, but use it topically and in my nose with great results.

I strongly believe that fibro has a degree of autoimmune deficiency associated with it! Molly I think you're on to something there. It definitely is connected with the immune system.

[NfldArtist]

Quote:
I strongly believe that fibro has a degree of autoimmune deficiency associated with it!


I also believe it. I had an overactive thyroid and had to take the radioactive iodine to kill the overactive cells. A naturopath wouldn't touch my case as I was on beta blockers by that time..2 weeks after the iodine I went to a specialist and asked him why I had sore spots in my chest ribs...hurt like hell to touch. He didn't have a clue and said it had nothing to do with my treatment..I disagree..something happened at that time to bring on the trigger points that were not there before..that was the start of going downhill then...

[number42]

I'm all for using natural methods over chemical ones when they're available, but I don't think taking colloidal silver long-term can be healthy. If it works as it's supposed to, as an antibiotic, it kills a lot of things in your body, "helpful" bacteria and such, that are supposed to have a positive effect on your system. If this stuff is as powerful as it's claimed it is, you can be sure that it has drawbacks too.

[rfscala]

I had EXTENSIVE blood work at my first visit to Fibromyalgia & Fatigue Center near Phila. When the doctor went over the results with me, I thought he was nuts. Yes, "invasion" would be the correct term when testing shows values so high that it would confirm an active infection of Epstein-Barr (which I had at 13 yrs old, now I'm 48).
It seems that the virus is capable of hiding in the body until the time is right to take over. When the adrenals are run down and thyroid won't work, etc, the virus is free to roam and multiply.
I don't believe medicine understands this currently, as each doctor I speak to makes up a different reason for it.

[Lanny]

last time ive used antibiotics was 10yrs ago or so...(knock on wood) im lucky to be healthy and doesnt get sick aside from a cold here and there...but i do have fibro and in my case its not caused by antibio..nor grains or gluten or whatever ppl think whats out there that causes fibro...its just plain lack of sleep...when i had my son almost 19yrs ago he never slept... well let me rephrase ..he would sleep and get up every 2hrs of so for a year..then when he was about 2yrs old he would sleep maybe like 6hrs...since newborn i was up all the time with him...i was burnt...i never had deep sleep even before him but when he came along that triggered Fibro..i only found out about 6yrs ago that i had that...the only thing that works for me is my yoga and not do weight lifing like i use to..that is finish for me or all my joints are out of whacked...today i went out to shovel with hubby 40cm of snow fell today...we have an extremely long driveway..:( (snowblower gave up) all my joints are hurting today from head to toe...what i wanted to say is that one day my husband was working with this spanish guy and this spanish guy believed in silver treatment..but i remember my husband had an infected finger (hes a machinist and cut himself) and the spanish man gave him a piece of silver and said to put it in water and drink it...i freaked out and said dont do that..hubby never took it either...but the spanish man really believes in this silver...it wasnt drops either but a piece of silver so i felt something was wrong...i dont think i would try colloidal silver for my fibro cause im not sure if it will really work for me...i dont know, im not a big fan on mixing stuff...maybe i need to read more...i know i alway read everything and research everything before taking anything...all of your posts are so interesting...ive learn a few things too..well im off to read your links...thanks :)

[kuukuu]

I've seen the band-aids with silver in them...So maybe there's evidence that topical treatments work if a band-aid company is willing to make money off of them. Still skeptical about ingesting it. Can't seem to get past the aluminum we're not supposed to be putting in our bodies either. Just me I guess. I hope it works for you. I'd love to know there's a cure that big pharma can't get it's claws into.

[SissyPoo]

My fibro came on me when years ago I had to have some intestinal surgery and every since the surgery which has been 15 yrs. ago I have had fibro. I hurt all over, every muscle, even my skin hurts.

They give me muscle relaxers for it and even pain medication but nothing helps. I feel like I am running fever all the time even though the thermonther does not register any fever.
My docotr says there is nothing that can be done for it..I am just so tired of suffering with it.

[amandawald]

My fibro came on me when years ago I had to have some intestinal surgery and every since the surgery which has been 15 yrs. ago I have had fibro. I hurt all over, every muscle, even my skin hurts.

They give me muscle relaxers for it and even pain medication but nothing helps. I feel like I am running fever all the time even though the thermonther does not register any fever.
My docotr says there is nothing that can be done for it..I am just so tired of suffering with it.

Have you looked into Coconut Oil to help relieve the symptoms? I've just read "The Coconut Oil Miracle" by Bruce Fife and I think he mentions it in connection with fibromyalgia.

I hope you find something which helps.

amanda

[Nancy LC]

My fibro came on me when years ago I had to have some intestinal surgery and every since the surgery which has been 15 yrs. ago I have had fibro. I hurt all over, every muscle, even my skin hurts.

They give me muscle relaxers for it and even pain medication but nothing helps. I feel like I am running fever all the time even though the thermonther does not register any fever.
My docotr says there is nothing that can be done for it..I am just so tired of suffering with it.
Oh no, that sounds awful. But you shouldn't just give up looking for answers just because your doctor is clueless. There are patient groups with lots of knowledge and help for people with chronic pain. Please spend some time on the internet searching, you could find a solution.

Here's one: http://www.ninds.nih.gov/disorders/chronic_pain/chronic_pain.htm

I remember seeing on Mystery Diagnosis one woman who had terrible pain after an accident that spread and got worse... the disease was called RSD http://en.wikipedia.org/wiki/Complex_Regional_Pain_Syndrome

Anyway, even if they can't treat the underlying cause you should be under the care of a good pain management specialist.