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skyspinner
Mon, Apr-25-05, 10:56
I've found something wonderful and I'm shouting it from the rooftops. Guaifeneisin!

Dr. R. Paul St. Amand, M.D. has developed a system of using a very inexpensive drug, guaifeneisin, to treat, reverse and stop fibromyalgia syndrome.

I've been on it just over a week, and am amazed at the way it works. I have no affiliation, just a grateful user already well on the journey back to pain-free health.

For more information, google on "guaifeneisin" or go on over to http://www.fibromyalgiatreatment.com/EasyQuickLinks.htm and start reading from the top link on down. It's not the only such website, but it's a real good one, run by Dr. St. Amand's nurse and co-author of his books, Claudia Craig Marek. You've hear the saying "they wrote the book on..."? Well, they did! :lol:

It's a very simple protocol. Simple to understand, simple to implement, simple to continue.

There's lots of support available on email groups, so you don't have to feel like the Lone Stranger as you investigate and try it out.

Dr. St. Amand has written two books on his experiences as a FMS sufferer and physician, and they are definitely worth reading. Get them free from your local library. Buy them later if you wish.

Guai is cheap! I spend about $25.00/month on it, buy it right off the shelf at Safeway, or it's available all over the web.

The pain, stiffness, depression gradually ease up as your tissues clear, and if you stay on guai, you can live a normal life. There are no side effects to worry about, no stomach upset, nothing!

Do yourself a favour and check it out.

Please let me know how it works out for you.

Take care,
sky

VALEWIS
Thu, May-05-05, 01:03
Sky, I have some but not all of the symptoms and so don't know if trying this is worthwhile. I mainly have the muscle soreness, tendency to cramp very easily, fasciculations in the lower limbs, and can fatigue easily. But I do sleep pretty well. I also don't think I have any tender spots (whole body seems tender to me!!) and no lumpy bits (that isn't just fat). I take 5HTP and this seems to keep me feeling better, but it doesn't fix anything. I would put it all down to old age except that I have had these symptoms for a long time.

What was your situation, and what dose did you get to for the symptoms to get worse? How long before it reversed?

Val

Gailew
Thu, May-05-05, 08:16
Sky, I am very happy for you! :) I have heard that guai really helps a lot of people--unfortunately, it didn't do a thing for me when I tried it. What helped me tremendously was getting off grains. It's definitely a syndrome of many different facets and it looks like each individual has to figure out what works for them personally. It's so great you found out what helps you, and hopefully others will try that and see if it helps them.--Gail

skyspinner
Sat, May-07-05, 23:05
Hi Gail and Val! Good to see ya here.....

Val, I have had tolerable pain for years. Was diagnosed w/ FMS about 8-10 years ago, but didn't believe I had it. Was Rxed w/ antidepressants, which I never took.

Not everyone has all of the symptoms, and individual's symptoms change from time to time. I have had pains in my shoulders and mid-back, many years ago before the diagnosis had profound fatigue at times, have trouble sleeping through the night, cannot go back to sleep if I wake before morning, get very tired and sleepy in the afternoon, then cannot go to sleep at night, headaches, chronically stuffy nose for many years. I also have "fibro fog", especially after eating carbs, notably wheat. I get very groggy, cannot push a thought from one side of my mind to the other and usually don't feel better until I have slept.

I began taking 400 of Fast Acting (FA) guai twice daily just twenty days ago. I began cycling that very day! It was my dose, so I didn't have to do any adjusting at all. I take an Aleve twice a day and that helps the pain of cycling a lot.

I feel great, my aches and pains are still tolerable, I believe that I am reversing the process and am looking forward to the day when I am completely cleared and the process is completely reversed. I cannot recommend it too much!

Gail, if you tried guai and it didn't work for you, there are several things that could be operant. You may not have FMS. 40% of all women in the US have it, 20% of all men. You may not be one of the groups that have it.

You may not have cleared all salicylates out of your life. Sals compete for the same receptor sites in the kidney that guai does, and as sals are a better fit than guai, your guai may have been blocked and you got no results from taking it. There is lots of information on salicylates on the St. Amand website. I cleared out my sals in one day. It's really easy. The only things I had to replace were deodorant and shampoo.

You may not have found your clearing dose. Dr. St. Amand has results w/ about 80% of his patients on the 300 mg twice-daily dose. Others need more. If you are absolutely certain that you are sal-free and that you do have FMS, then the only problem is insufficient guai.

There are many things that help somewhat, but guai *reverses* the process as no other substance can do. If you have FMS, if you are sal-free and if you are taking enough guai, it cannot fail to reverse the process.

You cannot map your own body. It takes someone like a physical or massage therapist or a physician who is familiar w/ how tissues feel to identify the lumps and bumps, and can reach places you cannot. Regular mapping, preferably w/ the same person doing it, is the only way you can actually prove that you are clearing. I am not able to locate anyone to do this and was not willing to wait, so I just cleared out the sals and began taking guai. My pains increased; I believe it's working for me. I'm willing to go w/ this for now and get mapped when I can.

But I'll leave you both to read further on it and to decide if you want to do the protocol. St. Amand's website is pretty much what you need to do it.

Good luck! Come back when you have questions to which I might help you find the answers.

Gailew
Sun, May-08-05, 06:14
Very interesting. Yes, I definitely had FM, with all the trigger points, and now don't have those, so maybe I don't have it anymore. My aches and pains seem more of inflammation or autoimmune nature nowadays, and respond to getting off gluten containing grains better than anything else. My chiro, who's worked with FM and CFIDS a lot told me people seem to gradually work out FM and he thought I was almost thru it about 3 three years ago. But the gua/sal protocal is something I'll keep in mind if I need to problem shoot further.-Gail

skyspinner
Sun, May-08-05, 16:35
Fibromyalgia is a genetic flaw. That means that if you once had it, you still have it. :)

skyspinner
Wed, Jul-13-05, 09:31
Gee, this is SAD! Fibromyalgia is affecting nearly half the population of people in the US, and I can't GIVE away the solution!!! Guai Rocks!! Suffers of the world, give up your pain and get well.

Oh well......I am having good results, at least.

I got my first mapping done w/ a friend who does massage, and after I get through two weekend camping trips coming up at the end of July, I shall go back for the followup map. I hope to see some good changes then. I'm waiting until after the camping because I was kinda sore the day after the mapping. She was super gentle, but just palpating my body for the "lumps and bumps" St. Amand describes makes it hurt more. Going INTO sleeping on the ground w/ a sore body is not a "Good Thing". :lol:

In the meantime, I am not finding it difficult at all to avoid sals. Sure hope I don't learn after my next mapping that I'm not clearing as I think I am, 'cause it will lead to a lotta work sorting out any sals I'm still encountering. :agree:

I've got really good at reading labels.....not a problem at all.

I haven't had to give up much of anything. Toothpaste? I bought some Tom's of Maine apricot flavoured stuff that's pretty good, but I also have taken a liking to brushing w/ baking soda. It really cleans well!

Shampoo? I lucked out there....after I bought some Pantene, Johnson's baby shampoo and the stuff that makes your hair curly, I got to reading the labels on my fave Tresemmes and found that I didn't actually have to do anything more than change to a different Tresemme formula. I like that!

I've learned to wear latex gloves to garden.....just hafta remember not to pull weeds or deadhead flowers w/o ma gloves. Piece a cake.

My deodorant has been the biggest challenge, and I'm still working on that.....had ta give up my cherished Secret 'cause every single one of their formulae has palm oil in it. To make it solid, I guess. I haven't tried to look for a Secret roll-on....that may be a solution.

But in the meantime I am using Ban roll-on and it's okay, but not nearly as effective as my good ol' Secret. Oh well, perhaps we FMs will get to be such an economic force that they'll make a sal-free version just for us!

I had to give up a wonderful nail care product simply because I could not get the customer service folks at that company to 1) comprehend what I was saying and asking for, and 2) respond to me in any helpful fashion. So, they don't get any more of my money. My nails are in much better shape anyway......I think it's because the guai is taking the phosphates outta my system and my nails are less brittle and better hydrated because of it. So, not much loss there. :)

I found an amazing oil-free SPF 45 sunscreen over at the Marina Del Rey pharmacy, just around the corner from Dr. St. Amand's office. Online at www.fibroconnection.com (http://www.fibroconnection.com). They specialize in all sorts of sal-free products.....personal care, makeup, sun screen, bug spray. It's very nice to be able to buy anything of their lines and be secure that I'm not nuking my guai. I really like the oil-free sunscreen, 'cause I avoid wearing it if it makes me sweat underneath it. It's so ugly and sticky I run the risk of exposure rather than wear it, and I've tried a lot of brands. But this one is great! It even makes my skin softer and smoother, so it's almost like a beauty treatment. Plus, plus!!!

I also ordered their 400 mg FA guai, and it's HALF the cost of the Humibid e I was buying at Safeway! Seems to be working, although I took a break when I ran out of Humibid e, and when I got back on again, my hands have hurt a LOT less, so the jury's still out on whether or not the new guia is working.

Guess I'm talking to myself here, but that's okay, I'm GREAT company! :lol:

Take care all,
sky

Nancy LC
Mon, Jul-25-05, 08:37
...and no lumpy bits (that isn't just fat).
Val

Val, something you said makes me curious.

What do you mean by lumpy bits? I have fatty lipomas all over my body, seems to be something that runs in my family.

Gailew
Mon, Jul-25-05, 10:43
I do agree, actually, that if you have FM you basically have it for the long haul. Mine has gone into remission before. Once I felt normal and was very active for 3-4 years and then I got seriously ill and it kicked back in. Twice, including now, I've improved until I had no pressure point pain but still had fatigue. Right now it looks like the fatigue is from hypothyroidism, which is still beign assessed. Since I am responding well to Armour thyroid, I hope to enter into a long, pleasant remission.
I still believe it's a case of YMMV, and this forum is great for sharing what works. Glad you found your solution! :) Gail

VALEWIS
Mon, Jul-25-05, 22:29
Nancy,

I have a few lipomas as well. I must have been referring to lumpy bits that are in the diagnosis of FM in some Sx lists. But they don't mean lipomas either.

Val

Nancy LC
Tue, Jul-26-05, 14:22
Ok. I've thought at times I might have FMS with my muscle/joint aches, but they've mostly disappeared since I've been getting treated with DHEA, testosterone, thryoid and progesterone. I never had any trigger points either, at least that I'm aware of. Just lots of muscle/joint issues.

Yakumo
Mon, Apr-24-06, 08:39
Hmm, I don't have Fibro, but I know people who do and I think it may benefit CFS and other people with "weird" related conditions (RA etc.). How can I get some? I live waaay away in South Africa.

Doesn't seem fun to play with though.

skyspinner
Mon, Apr-24-06, 11:11
You can google it and order from many sources on the web. It's really very inexpensive, especially if you use the short-acting kind. The timed release is more expensive, but it depends upon what works best for you.

The most often I've heard of anyone taking it is twice a day, so that's not bad.

It *isn't* play, because while it's clearing away the nasties it also causes pain. The payoff is in leaving your FMS behind forever. I've talked w/ folks who are much further along than I, and they say not only can you never suffer again, but you start to feel better within a relatively short time.

The longer you've had the fibro, the longer it takes to clear, but it DOES work!

HTH

quietone
Mon, Apr-24-06, 12:32
That's intereasting Nancy.

I had tried DHEA and found it really helped my fibro pain...but boy did it make me grouchy!

Have you had any problems with that?

Would I get over it eventually you think?

LC helps the fibro anyway, but I had a weird thing happen about a month ago...

I fell part way down the stairs...no big deal (or so I thought), bumped my rump, twisted my leg, twisted my wrist and ankle, but within 72 hours I had a FM flare that was unbelievable! First one in at least two years. I'm better now...but boy I had forgotten feeling so bad.

fibroart
Thu, Apr-27-06, 05:51
well i have looked into the Gualfenesin here in the uK And NO one sells it here and our doctors dont given know anything about fibromyagia and just say that there is no cure!! and thats that lol i have started on a low carb diet only a week so its early days yet am taking the reliv drink that i have been told that it will give me my life back and can take up to 2 years to do that i have been on it for like 3 mothes and still not pain free i have bad fibromyagia and am housebound for many years and sipmple things in life make me bedridden and i wouldnt beable to get mapping done here in the uk LOL well which Guaifenesin is best to take and can u give me a link please?

Yakumo
Fri, Apr-28-06, 03:47
Apparently a product from spain called recuperation is also good. Are you guys familiar with the Marshall Protocol?

fibroart
Sun, Apr-30-06, 02:19
:confused: :confused: :confused: :confused: :confused: hello am sorry i have never heard of it there are so many out there it does get soo :help: if u get where am coming from lol

Micha2
Wed, May-03-06, 07:26
The Marshall Protocol involves taking a particular drug called Benicar, avoiding all sunlight, bright lights and foods and supplements containing vit D and taking antibiotics as well I think. It is used for particular diseases mainly caused by bacteria including Lyme Disease which I have. There is a public MP website that answers all the basic questions about it.

Personally I don't like the sound of it as I love being out in the sun in the garden.

Regards
Michaela

fibroart
Thu, May-04-06, 02:27
Dont sound like fun to me! lol i wouldnt given go near that one lol
what treatemnts are u on for ya fibro? and are they helping?

Yakumo
Thu, May-04-06, 02:53
Yeah, there are good reasons to be very cautious about marshall protocol. I just mentioned it because I think fibro, Lyme, CFS etc. all are reallymore or less the same thing fundamentally and respond to similar treatments. I'm not advocating the marshall protocol (I don't do it). Sorr, I can't find a link for recuperation. Do a search for Dr. Teitelbaum. I think it's one of the products he uses.

Yakumo
Thu, May-04-06, 05:14
http://www.recuperat-ion.com/

Some think it's great, some not.
Also:
http://www.alfredblasi.net/eng/experiencia/ingles.HTM

fibroart
Sat, May-06-06, 04:13
umm i think am going to go for the Gual protrocol as i have been looking into it and have found hope in it and 1000s of testiomies as well if anyone wants links then let me know?

Yakumo
Sun, May-07-06, 11:52
Guai does sound promising

fibroart
Mon, May-08-06, 03:20
yeah i have joined up with the offical Uk yahoo support group and they are so friendly and very supportive and a member of the group is giving her old copy of the book she has ( cos i dont have any money lol) of the Gualfenesin protrocol so thats very kind of her!
here are some testiomies from the team of Dr R paul st amond he had fibromyagi him self and so do all of hes team
www.fibromyalgiatreatment.com/team.htm

miristar
Wed, Jun-07-06, 08:31
The recuperat-ion people do a really hard sell and it seems expensive. I love that guai is over the counter and inexpensive. The other thing that my doc mentioned to me is D-ribose, which is also pricey, although it is available from swanson vitamins ... so I am going to try it too. I would love to be able to get my daughter to take something that doesn't take a lot of life changes. I think she has FM and she isn't sure.

I'm still very new to this but have been reading - books on guai and also the older books by Deryl Starlanyl (sp?)

I am excited to see that there is a whole forum about FM here! I have had it suggested by a spedcialist that I may have FM; but from my reading I don't see how you tell for sure - is it from the mapping?

Thanks...

fibroart
Thu, Jun-08-06, 06:54
hello there,
well the best book u need to read is called What your Doctor may not tell you about fibromyalgia by Dr paul st amand am starting gaui very soon! And there are lots of support groups online for gaui and there is a over 95% success rate for gaui treatment
Diet is very important and Exercise for fibromyalgia
there is also a book called Fibromyalgia simple relief though movement by Stacie L BIGELOW ,M.A
You get Diagnosed from a doctor i live in the Uk u see

doreen T
Thu, Jun-08-06, 12:38
.... I love that guai is over the counter and inexpensive. Only in the US ;). In Canada, UK, Australia and elsewhere, it's available as a single drug by prescription only. It can be found in OTC cough preparations, but those contain other ingredients which are undesirable for long term use.

... have been reading - books on guai and also the older books by Deryl Starlanyl (sp?)Dr. Devin Starlanyl wrote favourably about guai in her first edition of Fibromyalgia & Chronic Myofascial Pain Syndrome: a survival manual, pub. 1995. However, in the 2nd edition, pub. 2001, she's a little more cautious., pointing out that "symptom reversal" does not mean cure. She also disagrees with St Amand's assertion that fibro, chronic fatigue, vulvar pain, candida yeast illness and myofascial pain are all the same disease.

You may wish to read Dr John Lowe's thoughts on guai therapy for fibro .. http://www.drlowe.com/QandA/askdrlowe/guaifenesin.htm. That site is a good one for overall discussion about fibro, diagnosis, and especially the hypothyroid link. You definitely should have your thyroid checked as part of the work-up to determine whether or not you have fibro.

Besides Devin Starlanyl's books (I highly recommend you try to get the more recent editions), you may also find Leon Chaitow's book, Fibromyalgia and Muscle Pain: Your Self-treatment Guide to be very informative and balanced. Dr Chaitow is a naturopath/osteopath in the UK; he's written several books on alternative therapies for fibromyalgia as well as candida illness and others. Your library probably has these and other books avaible for you to borrow, so there's nothing to buy ;).

I am excited to see that there is a whole forum about FM here! Just want to point out that this is primarily a low-carb forum, and this section is for members to discuss low-carb as it relates to fibromyalgia.

If you choose to do the guaifenesin protocol, please make sure that you're being followed and supervised by a qualified health practitioner such as a doctor or naturopath. Do not try to treat yourself or simply follow the advice, however well-intentioned, of strangers on an internet message board. Even in diagnosing fibro, there are often overlapping conditions that require medical treatment. Be especially cautious if you are female of child-bearing age :exclm:. The guai protocol requires you to be on the drug for the rest of your life, and there have been reported cases of birth defects in babies born to women who took guai during the first trimester (when they may not have known they were pregnant).


Doreen

VegGrrl
Thu, Jun-08-06, 12:42
Wow, there you go again Fibroart, you can't even give correct supporting info. Pray tell us where you found that 95% success rate? If I recall correctly, Dr. St. Amand doesn't even claim that high a success rate! (If he does, he's leaving something out!)
I was reading this thread and saw that you weren't even on the Protocol in April? How can you say at works then? How do you know? Most of my friends who started Guai at the same time as me, over a year ago, still aren't well enough to honestly be able to say that. (One still can't work, the other is in constant pain and getting new, worsening symptoms, how's that for Guai working?) I live close to Dr. St. Amand's office, and went to a support group by the illustrious Claudia Marek, and I will tell you that out of 12 or so people, there was only one person who said Guai was working for her, besides Claudia of course, but she's kind of biased now isn't she?
Dr. St. Amand will try and tell you that you're supposed to be feeling ill because you're cycling, but don't we with Fibro kind of "cycle" anyhow? I know I haven't been ill the entire time since I've been diagnosed.

I'd suggest trying a more legitamite resource, like Dr. Jacob Teitelbaum's site. He is open to a wide range of treatments, some even considered holistic by some.

He treats infections, hormonal problems, sleep issues, and pain until he has it all under control.


OH! And btw, a note to whomoever it was that said they had to stop using a certain nailpolish, you really didn't have to, nailpolish is okay, doesn't have to be sal-safe, ask the great and powerful Guai Group. (Been there, done that.)

VegGrrl
Fri, Jun-09-06, 02:55
Just want to point out that this is primarily a low-carb forum, and this section is for members to discuss low-carb as it relates to fibromyalgia

Ooops, sorry, didn't see that earlier! Thanks for the info from Dr. Devin Starlynl's (sp) book, as well as the referral to the site about thyroid. I'm truly finding that DHEA is helping with my energy levels, stress tolerance, mood, and other things, though not all, so I'm very interested in reading anything that has to do w/hormones.

Now, back on topic. Has anyone had success in treating their IBS with low carb? I tried the "Hypoglycemia Diet" (Dr. St. Amand's) while doing the Guai treatment to try and increase my energy, to no avail, I even gained weight on it! I know people who it did help though...

OhYeahBabe
Fri, Oct-12-07, 12:11
Dr. R. Paul St. Amand, M.D. has developed a system of using a very inexpensive drug, guaifeneisin, to treat, reverse and stop fibromyalgia syndrome.


Isn't that the primary ingredient in Mucinex?

skyspinner
Fri, Oct-12-07, 21:05
Isn't that the primary ingredient in Mucinex?
Yep, and in some other meds as well.

fibroart
Sat, Oct-13-07, 04:07
:D :D hello all i have been on the Guai protocol for over a year now
and i have had over 100 pain free days and i walk for an hour and 25 mins a day 7 days a week and i have come so far! and the Guai protocol is the best thing that i have ever done for my health well just an update IT WORKS!! :agree: :agree: :agree: :agree: :agree: :agree:

skyspinner
Sat, Oct-13-07, 08:29
That's fabulous! I am so happy for you.

deb63501
Thu, Oct-09-08, 04:49
I too am on the guai protocol and it's working! As for the comment that the "sal-safe" isn't important, thats just not true. There is even a test to see if you're blocking the guai by doubling your dose and see if you get significantly worse, if you do, your'e not blocking with salicilates meaning that you're not using anything with sal's in them. Yes cosmetics have them but not all cosmetics, infact, I for one, will give them all up if it meant my pain was gone or even for 100 days per year!!!

It's not impossible nor actually even difficult to do the guai protocol, it's just a bit time consuming at first to read all the labels and make sure "sal" isn't hiding in them. Otherwise it's easy to follow and soooooo worth it. I too am beginning to see more good days than bad!!!

skyspinner
Thu, Oct-09-08, 16:01
That's wonderful, deb! It's good to hear from someone who has been on it for long enough to see it work.

Keep up the good work.

On the diet end of things, have you found that a low-carb diet has helped? I'm thinking that reducing sugar would have a positive effect on the pain.

VegGrrl
Fri, Oct-10-08, 14:25
Again, folks, take a look at the website for this and note how they do not have proof. If this worked, with all the money people donate, and that they make through the sale of salicylate-free products, books, and speaking engagements it REALLY shouldn't be that hard to put together a proper study. It's been years since the first one was attempted. If this really worked, don't you think it would be front page news?
I wasted a year of my life obsessing over this protocol (cuz that's what you have to do to do it, with all the stuff you have to avoid, the dosing to perfect, weird side-effects, stupid stuff like not drinking wheatgrass juice, walking on grass, not using the wrong medicines, personal care products...) it's ridiculous. I should have been all better within a couple of months with how short a time I'd been sick. And for the record, I actually live in CA, so I was close to the doctor and under his supervision.

skyspinner
Fri, Oct-10-08, 15:32
All right, VegGrrl, you are right and all the rest of these people who believe they are better are just plain wrong.

deb63501
Sat, Oct-11-08, 05:22
I have not tried the low carb diet yet. I'll tell you why, though. I am a huge skeptic. I wanted to go with one thing at a time and see the results first. Then, if it works, add something potentially even more beneficial. That way, one knows what it is thats working and what is not. Kind of my own "double blind" study of sorts. I'm looking to begin dieting and add in more exercise soon and will probably begin with a version of low carb just to see if it does make any difference. One step at a time lets me know if I'm on the right track or not and what it was that affected that either way.

To VegGirl..
There are so many reasons that it may not have worked. for one, what you describe is cycling, and yes, I know it's going to take a while to reverse all the effects. My first gut instinct is that you didn't give it long enough. Just because you only "think" you got sick a couple months before, isn't necessarily true. In fact, for most FMS patients, it's a gradual thing and rarely (I hate to say never) happens that someone ever gets "sick" and then is even able to get a diagnosis of FMS within a couple months. That's not the patient's fault, it's having to prove one's illness to so many who won't listen or to find someone who will listen, then have all the "tests to rule out" done. The protocol states it's 2 months MINIMUM, for every year one was ill. But thats only after the proper dosage is begun.

You may not have been taking the correct dose, and from what your story says, you may even have been taking too little or too much, or just been cycling. Think of it this way..... Being someone who lives in chronic pain, meaning tylenol just won't cut it on a daily basis, what if, just WHAT IF, you stopped short just a few months or even a year too soon? What if someone told you that one more year of chronic pain (while your body rids itself from the cellular level takes time) would give you lets say four of seven days each week as livable again? Would that be worth feeling bad for one more year? Do you not see that that year is going to pass either way?

deb63501
Sat, Oct-11-08, 05:34
as a psss.....

It's not walking on grass, it's walking on freshly cut grass thats the culprit. I see by your name that you are potentially a vegaterian? I could see by that alone how this protocol could fail if not careful.

Is it easy? No..... I now have to do things like read lables now. and thats something we all should be doing regardless. on a daily basis we can potentially add harmful things to our body under the guise of a lotion, not to mention doing the same to our kids. Deet was that way for a while before it got attention to it's being potentially harmful to kids in large doses. Does that mean it can't be used to fend off bugs? No it just means using it smarter, or finding something else that works.... but deet still repels bugs

cindy_cfid
Tue, Nov-04-08, 21:32
Guaifenesin is the primary ingredient in Mucinex. I haven't been able to replace long acting guai (Mucinex) with short acting guai (which is MUCH cheaper) I get guai off ebay & just bought bottles of 100 tablets for $25 each, which comes out to $13 month cost. I could probably get by with splitting one tablet twice a day instead of taking 2 per day but it's not worth it to me. I do not believe it is in anyway a cure. My pain has increased over the years, it is just managed with the guai.

fibroart
Wed, Nov-05-08, 05:52
About me.....

i have had fibromyalgia pain since i was 14 years old.
i crashed with full blow-en fibromyalgia at the age of 16 years old
i was disabled in unbearable pain near to a year and it took the doctors
around 2 years to work out that i had fibromyalgia i have had an bad case of
fibromyalgia since day ONE! before i started my treatments i couldnt walk to the
shop next door to my home which was only 5 feet away from where i lived
at that point i was bedridden most of the time for such an very long time
walking for 5Min's would MAKE BE BEDRIDDEN! IN UNBEARABLE PAIN*&^
i never had an pain free day, hours weeks, hour, min ever in my whole life!
for over 10 years!!*&^(^% would feed junk food sweets chocolate down me everyday
i never smile i was so big and so unhappy then!
i had serve headaches for 10 years unstop no break before the treatments as well
i couldn't even go to church it was that bad!

Then One day a wake up saying thats IT!! i cant take this pain and hell anymore
so i sat on the Internet day and night and i mean it i was serching and printing
off fibromyalgia treatments 24 hours a day i have seen over 8 doctors and i have been
deny help from pain clincs and the whole of the English medical field turn around
and said to me that the whole of the medial feid cant help you they cant do anything
for fibromyalgia!!

But you think that would make me GIVE UP THEN YOU CAN THINK AGAIN! LOL
I HAD MORE FIRE POWER TO GET BETTER AND SAID TO MY SELF THATS IT I WILL DO IT MY SELF THEN
i have tried very so called Cure in a Bottle/Tin and i have tried pain meds pain meds only cause rebound pain and that's why they don't work they didn't even touch my pain One cm! i have done extreme Research into everything under the sun for many years



2 years later Today i have HAD OVER 200 PAIN FREE DAYS AND I WALK FOR 2 HOURS A DAY (5MILES A DAY) (35 MILES A WEEK)
There is No cure for fibromyalgia/cfs/me but there is hope as you can get better with the Guaifensin protocol/diet and exercise i still have to limit my life and i have to pace my self out if i aint careful then i will be bedridden for life BUT NOW I can have a part time life now as before the treatment i didnt have a Life!! i know i will get good days and im positive person now and now am going forward and not backwards forward is getting better and backwards is waiting around for the pain to go away and getting worse and worse to the point that i would have to be in a wheelchair going forward is doing something about it and going on the Guai protocol and working by backside of getting by life back am getting there slowly but that's better then never the lord will not help you if u will not help your selfs !

am here to help you if you want help in getting better am here for you as am healing slowly and i havent been so happy in my life

I HAVE A LONG WAY TO GO BUT I WILL NEVER GIVE UP ON GETTING MY FULL LIFE BACK I WORK HARD AND I GET MY BLESSINGS WITH GOOD AND PAIN FREE DAYS! IF I STAY WITHIN MY LIMITS AND DO MY TREATMENTS THAT WORK!! 100% IM WORKING TO GET MY FMS INTO REMISSION AND I HOPE THAT ONE DAY I WILL BE BLESSED WITH REMISSION FOR THE REST OF MY LIFE!! WHEN I DO I WILL BE HAVING THE BIGGEST PARTY U HAVE EVER SEEN!!!!!!!
WHO WANTS TO JOIN ME????????????????


WHAT TO DO GET THE BOOK CALLED
WHAT YOUR DOCTOR MAY NOT TELL YOU ABOUT FIBROMYALGIA
BY DR PAUL ST AMAND
AND READ IT AND FOLLOW THE PROTOCOL TO THE LETTER

FOLLOW HES HG DIET AND TAKE OUT RED MEAT AND WHITE FLOUR AND TOMATOES FOLLOW IT TO THE LETTER!

START AN WALKING PROGRAM DO IT EVERYDAY! NO MATTER WHAT!! DO IT!
GET THE BOOK CALLED FIBROMYALGIA COOKBOOK BY MARY MOELLER AND FOLLOW
DONT WORRY ABOUT THE HERBS AND SUPPLEMENTS U DONT NEED THEM TO GET BETTER AS THATS WHAT I HAVE DONE

ps i ONLY BUY CHEAP SAL FREE SHAMPOO AND SOAP FOR 2 YEARS NOW FROM MY LOACL SHOP

I HAVE HAD 2 MONTHS PAIN FREE ASWELL THIS YEAR IT WORKS

PlayDoh
Sun, Nov-30-08, 04:01
my goodness! don't any of you U.S. folk have the 99 cent store or dollar tree? i can't remember which of the two it was, because i shop them so frequently, but i got generic mucinex, 60 tabs, 400 mg each, for a buck. it's the same stuff, works fine, just darn cheap. it's too bad it can't be sent across the borders. it sounds like the prices are so much better here.