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Renny
Thu, Sep-16-04, 19:52
A friend suggested I try this method of getting some advice. I could write page upon page upon page but to make it short and readable......My daughter was always very healthy and within the 70th percentile until she was 15 months old. Then at 15 months old all of a sudden she was off of the charts. By her 18 month old visit she had gained 11 more pounds. We have continued on the weight gain trend since that time and now, at age 7 she weighs 130 pounds which is even hard for me to write. We have seen doctor after doctor after doctor since we have moved alot with my husbands job. They take one look at her and do diabetes and thyroid testing, then when the blood results come back normal, they talk about nutrition. I can honestly say that nutrition is not the problem. We even have been evaluated by 2 different nutritionists a couple of years apart who have agreed that it is not nutrition. We have a 9 year old daughter who is very thin and very healthy. She eats the exact same things as our heavy daughter. I do realize metabolism is different from person to person but this is SO extreme! We had found a doctor at one point about 1 1/2 years ago who used the body temperature to measure the thyroid and when the basal temperature is low (below 97) he puts them on thyroid medicine. (Armour Thyroid). We did this for over a year and it was so wonderful. It worked very well at keeping the weight in check. It also brought her body temperature up to a normal instead of her body temperature being anywhere from 93.4 to 94.6 most of the time. An endocrinologist who saw her about a year later threw a fit and insisted we take her off of the thyroid meds when her blood work was normal.....long story but the short of it is that within 6 weeks of being off of the thyroid meds, she put on 22 pounds. Now 16 months later she has gained 50 pounds .... from 80 to 130. The original doctor wants her back on the thyroid but I'm worried about it. My big question is: If she was NOT supposed to be on thyroid meds then why did she not show signs of too MUCH thyroid? She didn't show signs of too much so obviously, she needed that extra! Anyway, I wondered if anyone else had any input on this. I recently found a web site describing Wilson's Thyroid Syndrome which sounds just exactly like my daughter to a T! But, I also sense, from reading some of the web sites, that doctors are not too big on this. If ayone can help me, please, please write back. Thanks!!

mischa
Fri, Sep-17-04, 12:02
oh boy I don't think anyone is qualified to give you medical advice. I would suggest switching doctors and keep switching until you find someone doing something about it.

I wish your daughter great success in getting this solved.

hugs

Iowagirl
Fri, Sep-17-04, 12:42
Welcome Renny - so sorry to hear about your daughter's issues. Mischa is right - we are not doctors. But there are lots of parents on this forum and I'm sure they would agree that you should follow your instincts. If you were pleased with your previous doctor and his treatment, perhaps you should revisit them. She is your daughter, you will know what is best.

doloresrod
Fri, Sep-17-04, 13:49
I definitely agree, if you were happy with the previous doctor then switch back. Your daughter had an extreme low temp. she definitely has to be hypothyroid. These doctors need to get more educated when it comes to thyroid. I am 35 years old and dealt with 2 doctors that wanted to put me on anti depressants and I said no. Fortunately I found a doctor who believes in going by the symptoms and not the blood results. I was borderline low and I was put on Armour.

I wish you all the best.
Dolores

sugarjunky
Fri, Sep-17-04, 16:35
I definitely agree, if you were happy with the previous doctor then switch back. Your daughter had an extreme low temp. she definitely has to be hypothyroid. These doctors need to get more educated when it comes to thyroid. I am 35 years old and dealt with 2 doctors that wanted to put me on anti depressants and I said no. Fortunately I found a doctor who believes in going by the symptoms and not the blood results. I was borderline low and I was put on Armour.

I wish you all the best.
Dolores

I agree with this also. I have a 13-year-old daughter, and if she were experiencing what you have described, I'd be taking her back to doctor #1. A third opinion is always another route too.

Trust your instincts. :agree: :thup:

I wish you both the best.