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Originally Posted by Demokat
Hi treepatrol,
Congrats on your weight loss! I know how hard it must be especially for you with Lyme Disease. My sister also has chronic Lyme and cannot work. Her energy level is too low to exercise. She has been on and off antibiotics for years. Her Lyme doctor thinks she may have had it for over 10 years when he finally saw here. It's important to let people know that the general knowledge that we get from the CDC about Lyme Disease is antiquated. Most people who suffer from Lyme are misdiagnosed as having lupus, MS, and a variety of other diseases. And most insurance companies stop paying for antibiotics and treatment because they go by the accepted outdated standards.
BTW I have known so many people here in MA with Lyme disease that it really is the epidemic no one talks about!
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What I hate about the ALDF.National institute for health and the CDC is tjhay keep publishing the word you used is absolutly correct (antiquated)!!
I was tested every year from 1988 till about 2000 at different hospitals because I had all the symptoms.over the years until finaly in 2001 It got so bad I searched for a LLMD {A Dr that is willing to learn about lyme. "Lyme literacy" means, first and foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a
clinical diagnosis,
based on symptoms and on your response to treatment.} and found one in PA.
Lyme symptoms Link
More Symptoms
Symptom Check List...
The Bite
1. Tick, mosquito, flea, deerfly, or horsefly bite
2. Rash at bite site
3. Rashes at other sites
4. Rash basically circular and spreading
5. Raised rash, disappearing and returning
(Note: EM rash appears in less than 50% of lyme patients and MANY never recall a bite)
Skin
6. Acrodermatitis chronica atrophicans (ACA)
7. B-Cell Lymphoma
8. Petechia
9. Hives
10. Shingles
11. Stretch marks
Head, Face, Neck
12. Unexplained hair loss
13. Scalp rash
14. Headache, mild or severe
15. Migraine
16. Twitching of the face or other muscles
17. Facial paralysis (Bell's Palsy)
18. Tingling or numbness of nose, cheek, or face
19. Facial pain
20. Facial swelling
21. Dental Pain
22. TMJ (jaw pain)
23. Sore throat
24. Hoarseness or weak voice
25. Vocal paralysis
26. Difficulty swallowing
27. Loss of smell or taste
28. Neck Stiffness, pain, or pressure
Eyes/ Vision
29. Swelling around eyes
30. Photophobia or light sensitivity
31. Double or blurry vision
32. Increased floating spots
33. Pain or swelling in eyes
34. Flashing lights
35. Tearing and/ or dry eyes
36. Vision loss or blindness
37. Dilated Pupils
38. Conjunctivitis
39. Uveitis
40. Iritis
41. Decreased perception of light and color
42. Decreased depth perception
43. Wandering or lazy eye
44. Drooping eyelid
45. Foreign body sensation
Ears/ Hearing
46. Ear pain
47. Sound sensitivity
48. Buzzing in one or both ears
49. Ringing in one or both ears
50. Decreased hearing in one or both ears
Digestive and Excretory Systems
51. Constipation
52. Diarrhea
53. Irritable bladder (trouble stopping or starting)
54. Frequent urination
55. Kidney failure
56. Splenitis
57. Nausea or vomiting
58. Gastritis or upset stomach
59. Abdominal cramping, pain
60. Abdominal paralysis
61. Bloating
62. Gastro esophageal reflux
63. Difficulty eating
Musculoskeletal System
64. Joint pain or swelling
65. Stiffness of the joints, neck, or back
66. Tendonitis
67. Muscle pain or cramps
68. Joint creeks and cracks
69. Neck and shoulder pain
70. Heal and foot pain (plantar fasciitis)
71. Spinal sensitivity
72. Herniated disk
73. Back pain
74. Bone pain or erosion
75. Shin splints
76. Cartilage erosion
77. Cervical pain
78. Gangleon Cysts
79. Migrating pain
80. Carpel Tunnel Syndrome
Respiratory and circulatory Systems
81. Shortness of breath
82. Persistent cough
83. Sleep Apnea
84. Chest pain or rib soreness
85. Vasculitis
86. Frequent and easy bruising
87. Unexplained fevers, sweats, chills, or flushing
88. Heart palpitations or extra beats
89. Any history of a heart murmur, heart block, or valve prolapse
90. Heart attack
91. Pulse irregularities
Neurological System
92. Tremors or unexplained shaking
93. Burning or stabbing sensations
94. Weakness or partial paralysis
95. Pressure in head
96. Aneurysm
97. Coma
98. Cranial nerve abnormalities
99. Dementia or Alzheimer’s-like presentation
100. Multiple sclerosis-like presentation
101. Meningitis
102. Pseudotumor cerebri
103. Tingling, numbness, or shooting pains
104. Dizziness, lightheadedness, wooziness
105. Fainting
106. Difficulty walking
107. Increased motion sickness, vertigo, poor balance
108. Seizure activity
109. Stroke symptoms
110. Restless leg syndrome
111. Diminished Reflexes
112. Gait problems
113. Clumsiness, dropping things or bumping into objects
Psychological/ Well-being
114. Mood swings
115. Irritability or low frustration tolerance
116. Depression
117. Feeling as if you are losing your mind
118. Overemotional reactions, crying or becoming enraged easily
119. Hypersensitivity
120. Inappropriate laughter
121. Poor judgment
122. Restlessness
123. Easily distracted
124. Apathy, listlessness, or lack of motivation
125. Insomnia. Disturbed sleep, early awakening
126. Panic attacks or panic disorder
127. Anxiety
128. Obsessive-compulsive behaviors
129. Bi-Polar presentations
130. Hyperactivity
131. Suicidal thoughts
132. Paranoia
133. Personality changes
134. Hallucinations- auditory, visual, or olfactory
135. Nightmares or night terrors
136. Eating disorders
137. Schizophrenia-like disorder
Mental Capabilities
138. Brain fog
139. Memory loss (short or long term)
140. Confusion
141. Forgetfulness
142. Cognitive overload
143. Loss of creativity
144. Declining school performance
145. ADD
146. Difficulty concentrating, thinking or reading
147. Tendencies to go off on conversational tangents
148. Difficulty with speech (slow, stammering, or slurred)
149. Word reversals when speaking
150. Difficulty with writing (number and letter reversals)
151. Word finding difficulty
152. Facial recognition difficulties
153. Slowed or inconsistent processing skills- planning, prioritizing, sequencing, or tracking
154. Difficulties with calculations and directions
155. Difficulties with multi-tasking
156. Difficulties completing tasks or meeting deadlines
157. Disorientation: getting lost, going to the wrong place, forgetting your destination
158. Forgetting how to perform simple tasks
159. Orientation difficulties (up-down, left-right)
160. Poor spatial judgment
Reproduction and Sexuality
161. Sexual dysfunction or loss of libido
162. Unexplained menstrual irregularity, pelvic pain
163. Unexplained milk production, breast pain
164. Testicular pain/pelvic pain
General Well-being
165. Unexplained weight change-loss or gain
166. Extreme fatigue
167. Swollen glands
168. Cystitis or nodules under the skin
169. Unexplained high or low-grade fever or hypothermia
170. Continual infections (sinus, kidneys, eyes, etc.)
171. Symptoms seem to change, come and go
172. Pain migrates to different parts of body
173. Early flu-like illness from which you have never fully recovered
174. Increased Thirst
175. Profuse Sweating
176. Achiness
177. Lethargy
178. Malaise
179. Itching
180. Autoimmune presentations
181. Increased sensitivity to allergens, chemicals, or odors
182. Difficulties with Sensory overload
183. Exaggerated symptoms or worse hangover from alcohol
184. Fatigue, tiredness, poor stamina
Imatates diseases like these ALS,MS,Cronic Fatige,Fibromialga,Parkensons,irritable bowel,on and on and on.
It isnt easy to cure although its easier if you start abx's quickly at high doses even then it can be hard to eradicate out of our bodies.
I was foirst infected in 1988 and still fighting it started treatment 2001 this disease has the ability to hide from the immune system als it can turn itself spirochete into cyst form coccoid form bleb form and hide inside our cells it likes tissue any kind it corkscrews itself into it mucle ,bone,cartilage nevouse system,etc. It also can cause heart block it is was more formatable than there letting people Know! Then there are a long lest of coinfections which in itself are nasty.
If anyone suspects they have Lyme heres a few websites you can learn about it.
http://flash.lymenet.org/ubb/ultimatebb.php
http://www.lymeinfo.net/lymefiles.html
http://www.ilads.org/ Drs who know lyme.
http://www.lymediseaseassociation.org/index.html
lyme disease
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