It's been said before, but...
...I'll repeat it. Mostly because the reproductive endocrinologist said it, too...
Tests don't always show everything. I went to at least three GPs before I referred myself to an endocrinologist. *I* knew something was wrong. And I *KNEW* something was wrong. Despite what The Tests Said.
It is very hard to be persistant and very easy to be demoralized. Doctors are impatient people, and I suspect insurance companies really lean on them to keep costs down.
If it helps, this is what I did... first, a lot of research on the internet. Lots of bad info out there, to be sure, but plenty of good stuff, too. Especially on this forum. Then I wrote a letter, took it to my GP, who ordered some blood tests and an ultrasound, then ordered some more blood tests (that I did not have done). Then told me that there was something abnormal, but nothing to worry about unless I had pain, in which case she would refer me to a GYN.
So back to the research. I started entering search text into google.com to learn about the various body systems that affect or can be affected by insulin and testosterone. This is how I learned more about the specialty of endocrinology. I already knew about PCOS, had been tested for it and told I didn't have it, then subsequently had two kids, which reinforced that notion, since most people treat their PCOS to solve infertility problems.
However, the other symptoms persisted and worsened, so I searched the web again for endocrinologists in my area and came across an office of reproductive endocrinology at umich. This is where my location is also my good fortune: to have such a large and respected university hospital nearby. This new doctor performed many of the same tests, plus a few new ones to rule out adrenal problems, and didn't come up with anything new.
The difference? He knows that The Tests don't always tell everything. All of the outward signs are there, and you read the writing on the wall. So after an hour long interview with him, I went back to the internet, where I discovered the link between PCOS and low carb diet. I put myself on this diet and lost 17lbs before my next visit with the endocrinologist.
THe man was overjoyed. He said, "You are very smart." I think he must see a lot of people who expect him to solve their problems without dictating a change in lifestyle. We all know it doesn't work that way, but sometimes it takes a pointer in the right direction to get started.
I see skinny women everywhere, since Ann Arbor is a college town. I see them chowing down on dim sum, ice cream, donuts and it's hard not to get upset at how "unfair" this is. Then I remind myself fairness has nothing to do with it. Some people's genes are programmed to "conserve" -- in times of lean resources, it was our ancestors who survived while all those skinny people and their high metabolisms burned up (metaphorically speaking). In our modern society, those genes are less necessary but no less robust, pun intended.
So now the best part of my low carb diet is not feeling guilty when i feel like eating half a package of bacon, even if I can't have the potatoes or the toast.
Erin
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