I am so frustrated

[Hismouse]

I have had Diabetes for 36 yrs, on and off meds, and yrs of nothing, and me being able to keep it under control. But my Bs in the am have been in the 150's for weeks now, my lunch Bs is 20 points lower then dinner 20 more down. I had a A1c of 7.2 same as the last 4 yrs.
My question is, will Vitamin D help it come down, I just odn't know what is cusing it to go up and stay.....
Looking for some answers...Thanks

[AgimA]

Sorry to hear about your frustration.

I was today at the endo, at least the dude is honest and told me that about diabetes we don't know a lot.

I think that the symptom diabetes has different underlying causes, gluten allergy, thyroid problems, gut problems, nervous issues, malnutrition, carb overload, etc...

I told the endo that the typifications of type I, II, 1.5, III, or whatever seem to be bogus and useless, he told me that I was right, but that's how it goes by now. He's quite a progressive and interested guy, avid to learn from his patients.

I told him about the doc that is taking the copalchi extract since years and is controlling her diabetes with that. I commented that it seems that a lot of docs don't take the stuff they prescribe to patients, but go alternative. I think I heard him saying, "I probably wouldn't either...", I'm not sure, since he mumbled it.

I also asked him what would happen if you inject insulin in a healthy human over longer period of times, "he would have a downregulation of own insulin production". I kept asking if he/she would have low peptide levels, "sure". "So if someone that is diabetic and regenerates his beta cells, you wouldn't notice", "yes, that would be the case" he told me. "The only way to know if he would regenerate his/her B Cells would be by a biopsy, but we can't do that, we would have to take out the whole pancreas and count the islet cells".

There are some scientists that claim that diabetes is a condition that "comes and goes", what seems to be supported through a lot of testimonials over the internet, including yours.

I was quite disappointed that my HbA1c was 7.2, but seeiing that 2 months ago it was 14.2, well, I'm doing extremely well. I'm taking quite an amount of supplements that have studies backing them, in animal and human models. He encouraged me and told me, whatever you're doing, go on.

The problem with supplements (and medicaments) is, that since we are all slightly different, the dosage is the problem, if 1gr of biotin works for me, that won't mean that it will work for you. Perhaps you'll need 10gr.

If I remember well, you think you're a Mody. If so, this means that you have a overexpression of some genes. Gene expression can be enhanced or reduced with substances. Zinc, for example can act as an gene regulator, even as a DNA corrector, again the problem is the dosage, too much, it will harm you, too low, will be detrimental as well.

Perhaps it would be a good idea to look in what stuff you're deficient (Vitamins, Minerals, etc...). Supplement the stuff in which you're lacking and you should see an improvement over time. Don't expect results after days, usually it will take weeks or months.

Vanadium, Zinc, Selenium and other heavy metals have shown that they're able to support the regeneration of B Cells in animal models.

I'd suggest that you inform yourself on the inet and look for studies backing the claims of supplement selling companies. If you see that cinnamon has shown to be beneficial in animal or human models and you can afford it, then try it out. Again, don't expect that it will work over night. The only thing that works almost instantly is insulin.

It's in your hands, you're the expert, just keep going and experiment, there's surely something out there that will work for you :)

[v-effect]

Hi there,

Are you T1 or T2? Can you give us some more information? A 7.2 is not terrible, though it is worth improving. If you are a T1, I might have some suggestions about your basal. I'm not sure that Vitamin D will produce that many changes- it hasn't for me.
V.

[Cajunboy47]

I told the endo that the typifications of type I, II, 1.5, III, or whatever seem to be bogus and useless, he told me that I was right, but that's how it goes by now. He's quite a progressive and interested guy, avid to learn from his patients.

I object to that comment.....

I think that 1.5 should come before 2, but other than that and it being exhausting to get to the end of your post, it was a post filled with "useful" information. I'd even say, that it was a lot said in very few words, but still tiring .... :)

------------------------------------------------------------------------

About Vitamin D producing changes in Blood Glucose, I can only say that I brought my A1C down from a 12.5 several years ago. I had a 5.4 A1C on my last test which was just a couple of weeks ago. I had my BG well under 6.0 for perhaps well over a year before I supplemented with Vitamin D.

I think Agima is correct in that you just have to experiment and experiment and of course, monitor along the way. If something is not working, do something else. There are not only supplements that help lower BG levels, but foods as well. It's an ever learning process and none of us with diabetes can claim to know it all or rest on our laurels thinking we've finally found the right combination of things to do for the rest of our lives...


Besides intake things... Sleep 7 to 8 hours nightly, rest when tired, don't stress and worry about things, keep to a routine, exercise and stay active.....

[Robin120]

You might just be becoming more insulin resistant (which often happens the longer you have diabetes). Vitamin D has not changed my BG, but it's really important to supplement of your leveles are low (the case for many people with diabetes).

Good luck!

[eddiemcm]

I do about 6400 IU of vitamin D a day.Have been doing that for about a year.Can't see any dramatic effect but I will continue to do it for awhile.
cheers/pills
Eddie

[RobLL]

I had my Vitamin D tested. I may still be on the tail end of that neurological/periodic fatigue thing that hit last May. I have been taking about 1500 D-3. The test came back at 34, allegedly OK, but minimally so. I am going to up to 3000+.

[Nancy LC]

I had my Vitamin D tested. I may still be on the tail end of that neurological/periodic fatigue thing that hit last May. I have been taking about 1500 D-3. The test came back at 34, allegedly OK, but minimally so. I am going to up to 3000+.
They're proposing a new range that starts at about 30. Optimally it should be 50-70, higher if you have a specific disease like cancer or MS.

[Cajunboy47]

I wonder if a conclusion was made about optimal vitamin D levels based on the levels found in healthy people, or based on patients with health problems who significally improved after increasing vitamin D levels...............

I didn't mention this in my prior post; but actually about the time I started supplementing with vitamin D, it's about the same time my BG averages went up a few points per day. Of course, I adjust my herbal supplements all the time and it could be that also, or just the diabetes running its course... But, whatever the case may be, I didn't see any improvement after beginning to supplement with vitamin D. Now, I am remembering; my Doctor never did call me back to tell my what my Vitamin D level was on my test a couple of weeks ago... I'll have to call and ask....hmmm, I wonder how long I'll be put on hold....

[Hismouse]

Thank you all for your info, I was told the diabetes I've had since 16 was Mody 2, and one other Dr, said it was caused from a bad case of strep, that turned and caused Rhuematic Fever when I was 14, and I have a hole in my heart from that. That Dr. said because I was 89 lbs at the diagnosed time, the infection damaged my Pancreas. So I am left between the two. I can only go with the Mody 2 because, my skinney nephew and very thin son and daughter have been diagnosed in there early 20's with Type 2, there Bs never go over 150. So Mody 2 or RF or both.

Yes it was 7.2 and c-peptide 1.5, Doc has said nothing, haven't heard from her. She is my new Dr. and she agreed that the Diabetes is Mody 2 based on my records. So do nothing? Guess, this is what she is doing.

Oh well, smaller portions, and being tight on a Low low carb diet will have to be my way....This am, I had stomach issues, BS was 164, has gone down to 130, and I expect by dinner it will be in the 120's.
Diabetes is such a stress in its self, how do you all cope?

[AgimA]

Hismouse

according to wikipedia, you're unlikely a Mody 2, did they sequence you as Mody 2 or was it a guess by the doc that treated you first?

The c-peptide level measured was a fasting one, I assume. But 1.5 seems to be in the normal higher range.

I'm having also stomach issues right now, on the toilet every 30 minutes or so... I will spare the details :D

But BG levels are around 5 (which would be normal for a person with an infection, should probably be even higher), weird, I don't get it.