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Demi
Tue, Oct-09-07, 03:13
Los Angeles Times
8 October, 2007


Science aside, food therapy for autism has support

Jenny McCarthy is the latest to advocate a wheat- and milk-free diet, although hard evidence to support the theory is lacking.

Parents with autistic kids often go to great lengths to help their children develop their social skills and improve their ability to communicate. They might work with them for hours every day or pursue little-known but potentially promising therapies dismissed by the medical mainstream. Some put their children on a gluten- and casein-free diet, on the theory that their children have gastrointestinal problems that can be eased by a food regimen free of wheat and milk proteins.

Now actress Jenny McCarthy has written a book extolling the benefits of such a diet. Following the regimen isn't easy -- eliminating gluten and casein is quite difficult. Gluten is found in a plethora of food products, including bread and soy sauce, and casein is a staple of milk, yogurt and everything else made from milk. But the diet dramatically helped her own son, McCarthy says, explaining that the number of words he knew doubled after being put on such a diet.

Her celebrity status is likely to lend credence to the diet as an autism treatment, but most health experts say there is no good evidence that supports its use in autistic children. "Even if autistic kids have gastrointestinal problems, it certainly doesn't warrant a knee-jerk response to go on a gluten- and casein-free diet," says Dr. Raun Melmed, a pediatrician with the Scottsdale, Ariz.-based Melmed Center, which provides services for children who have developmental disorders.

A 2002 study of 600 children registered with the General Practice Research Database in the United Kingdom found that at the time of diagnosis, the percentage of autistic children with gastrointestinal disorders was the same as in healthy children of the same age. "There doesn't seem to be that kind of gut problem," says experimental psychologist and autism researcher William Ahearn of the New England Center for Children in Southborough, Mass.

But a 2006 study of 50 autistic children in New York who were compared with healthy children of the same age and sex, found that autistic children were more than twice as likely to have GI problems by age 7 than their healthy peers. A large study led by researchers at the University of Rochester is in progress to address whether a gluten- and casein-free diet helps autistic kids; results are expected next year.

Ahearn says children who have developmental disorders such as autism do get more constipation and diarrhea than do other kids, probably as a result of not being potty trained as easily. "Just like every other developmental marker, they're behind," Ahearn says. But he worries that because autistic children are already pickier eaters than healthy children, they might not get the nutrition they need on the diet.

With results from the Rochester research still out, the stories of parents with autistic children who seem to improve on a gluten- and casein-free diet proliferate. Ahearn points out that the children might be improving because the parents are using proven interventions, such as intense behavioral therapy, along with keeping their children on a special diet. "If you do everything at once, and the kid gets better, what are you going to attribute it to?" he asks. "All the hard work the parents put in -- are the children learning new skills because they're being taught?"

But many parents and some autism experts say the diet works. Researcher Stephen Edelson of the Center for the Study of Autism in Salem, Ore., says autistic children often have gastrointestinal tracts that let nutrients slip through unabsorbed or other digestive problem. Some proponents of the diet theorize that the small proteins in wheat and dairy products slip out of the GI tract and head to the brain, where they mimic morphine and cause brain damage. Melmed says the evidence for that theory is shaky, and adds that parents should continue proven interventions -- regardless of whether they try unproven ones.


http://www.latimes.com/features/health/la-he-closer8oct08,1,7030960.story?coll=la-headlines-health&ctrack=1&cset=true

Nancy LC
Tue, Oct-09-07, 09:36
All I can say is giving up grains and milk does wonders for me and I'm not autistic.

And... what silliness... attributing constipation and diarrhea to potty training?

Bat Spit
Tue, Oct-09-07, 10:18
I can never understand why 'the experts' are so completely against even trying dietary changes. Its like these people think that avoiding gluten and casein is a) impossible and b) going to cause some catastrophic malnutrition.


How exactly would potty training issues cause diarrhea anyway?

Wifezilla
Tue, Oct-09-07, 15:16
My son is autistic and we did try a casin - free diet but it didn't make any difference. We try to limit his wheat intake, but all they serve at school is crap and he would have a total hissy if he had sack lunch every day.

He is 18 now, but I do wonder if cutting out the wheat would have helped him if we did it when he was younger.

Bat Spit
Tue, Oct-09-07, 16:14
I think for these to work well its best to start it as younger children, when you can more closely control exactly what they eat. I can only imagine what a nightmare it must be to institute things like that with a child who isn't necessarily capable of learning what they can't eat and reminding teachers.

From the studies I've read, you really need to eliminate all 3 to get the benefits.

But at least you tried it, Wifezilla.

sundancerk
Tue, Oct-09-07, 19:06
We started my daughter Katie on the gluten-free casein-free diet when she was three. I had found a vast deal of anecdotal evidence (but no studies) to support it, and I thought, "why not?" I was desperate to help my girl.

Practitioners that had been thoroughly convinced that Katie was textbook autistic were amazed at the changes in her just a few weeks into her new diet. Her vocabulary exploded, she was suddenly making eye contact (rarely did that before), she was holding two way conversations (NEVER did that before), and she basically seemed to break out of her own little world that she had been living in since birth. Her final diagnosis was Asperger's Syndrome (it's on the autistic spectrum, but different from autism in some essentials) and she is now a happy, healthy, well-functioning third grader. She eats much healthier than anyone else her age I've ever met--healthier than I did before South Beach. How can any doctor have a problem with a diet comprised of whole fruits, vegetables, and unprocessed meats?

I'm sad that the diet doesn't work for everyone, but one thing we've learned along the way is that no two kids on the autistic spectrum are the same.

Wifezilla
Wed, Oct-10-07, 11:04
"one thing we've learned along the way is that no two kids on the autistic spectrum are the same."

You got that right. I have a girlfriend who is autistic. While there are traits she shares with my son (and they are a constant source of amusement to her), she is verbal, has a full-time job, a boyfriend and her own apartment. My son will need supervised care for the rest of his life.