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ysabella
Tue, Mar-06-07, 15:24
This is not exactly low-carb news, but I thought it would interest those who have celiac disease, or suspect they do.

http://us.cnn.com/2007/HEALTH/conditions/03/05/HM.celiac.disease/index.html

Blood testing leads to better celiac diagnosis

By Judy Fortin

(CNN) -- An estimated 3 million Americans have celiac disease, but most don't even know it. CNN medical correspondent Judy Fortin learned more about the ailment from Dr. Cynthia Rudert, gastroenterologist and medical adviser for the Celiac Foundation, a national awareness organization.

Fortin: What is celiac disease?

Rudert: Celiac disease is an autoimmune illness. An autoimmune illness is when your body turns against itself. Celiac is not an allergy and it's not a food intolerance. People with celiac need to avoid anything that contains gluten. Gluten is in breads, cereals, soups, sauces, pizza and even medication. (Watch a mother and son learn to deal with celiac disease. Video )

Fortin: What happens when someone with celiac disease eats gluten?

Rudert: Their villi in the small intestine start to break off. You can take a biopsy in the small intestine and under the magnifying glass those villi look like long fingers. They should be nice and long. In celiac disease, if you have the gene and you're eating gluten those tips start to break off. You can develop malabsorption of nutrients.

Fortin: Is gluten often a hidden ingredient?

Rudert: Yes, and it's these hidden glutens that are initially really challenging. You really have to re-educate yourself how you're going to shop, and that can take months. I tell patients there is about a four-month learning curve because you will look at foods differently.

Fortin: How common is celiac in the United States?

Rudert: Celiac disease is the most common inherited autoimmune illness in America. It's thought to affect 1 percent of the entire U.S. population. Ninety-eight percent of them do not know they have the disease. (Visit the National Foundation for Celiac Awareness.external link )

Fortin: How long does it usually take to get a diagnosis?

Rudert: It's been published that the average patient has a seven-year delay in diagnosis. In seven years, many of these folks have seen five, six, seven or more physicians. They languish under other misdiagnoses, commonly: irritable bowel syndrome, spastic colon, abdominal pain, reflux. But you don't have to have gastrointestinal or GI symptoms to have celiac disease.

Fortin: Why is it so difficult to recognize the disease?

Rudert: I think because physicians were taught it was very rare, so they never screened for it and they didn't look for it. It wasn't until maybe 10 years ago that really good blood testing was available and that is the first line of diagnosis. If you think someone has celiac you should pursue it. The first step may be blood testing. It looks at certain components and antibodies.

Fortin: Can the disease be triggered?

Rudert: There are triggers that initiate the onset of celiac disease and we haven't figured out all the triggers that could be involved in the equation. Is it post-partum? I see that a lot. Is it pregnancy itself? Infections can also be a trigger, or overuse of antibiotics. Researchers are looking at a way to turn off the gene.

Fortin: Is it hereditary?

Rudert: Forty percent of all Americans have the gene. It's now recommended if you have a family member with celiac, then you be screened.

Fortin: Can the damage to the intestines be repaired?

Rudert: The damage can be repaired and that's the good news. Once you initiate a gluten-free diet, the villi will start to heal and completely heal in children in six months, adults within one, maybe two, years or less.

Judy Fortin is a correspondent with CNN Medical News.

fatnewmom
Tue, Mar-06-07, 15:49
great article, thanks.

Annie1gi
Tue, Mar-06-07, 15:52
Very interesting, truthfully I see people talk about it here, always wondered what it was. Thanks for that mystery solved!

Nancy LC
Tue, Mar-06-07, 16:58
I also want to mention that celiac can attack any organ. It can be manifest as a skin disease, or even a brain disease. But this is rarely discussed in medical training and the neurological community is just beginning to recognize it.

The "renegade neurologist" has been publishing some very interesting articles about gluten sensitivity and neurological issues. Here's one about a little girl who was having problems (http://renegadeneurologist.com/gluten-sensitivity-celiac-disease-adhd-and-other-neurological-problems-in-children-part-1/) in school.

My issues with gluten involved both my gut (IBS) and my brain, it also was causing my autoimmune arthritis and subsequent flares. Things have cleared up nicely since I've been gluten free and dairy free, although it did take about 1.5 years to feel "normal" again. I was never diagnosed as a Celiac but I figured it out from testing at Enterolab.com and dietary trial.

Nancy LC
Tue, Mar-06-07, 16:59
Forgot something... in my signature is lots of info about gluten sensitivity.

waywardsis
Tue, Mar-06-07, 20:21
My gluten issues involved gut and brain as well.

What I find curious is the focus on "celiac", which is just when the intestinal villi are damaged (or at least that's what most of the medical community seems to say). As Nancy said, gluten intolerance has varied effects, all of which suck ;) and can lead to very serious illness. I wasn't diagnosed with celiac (have to have an intestinal biopsy done, no thanks!) but I went through Enterolab as per Nancy's suggestion which showed I was having an autoimmune reaction to gluten. Good enough for me!

Jen C
Wed, Mar-07-07, 12:12
I'm new to this forum, but not new to LC. I lost over 100 lbs about five years ago doing LC and in the last year and a half, I have gained 15 (or maybe closer to 20) back. I realized I needed to do something before I returned to my old self. I have been LC again for about a month and have lost around 10 lbs. I'd like to lose about 10 more. The Celiac topic really interest me though. I was diagnosed with Multiple Sclerosis (an auto-immune disease) about seven years ago. But I have noticed that I do better when I am low carbing. I did slip the other night and have some (3 pieces) of thin crust pizza. I immediately noticed a "stuffed full" feeling and was miserable for that night and most of the next day. I'm wondering if I don't have gluten intolerance. And, if the low carb lifestyle isn't helping my MS????
This is my first post...... sorry it was so long.......this is a great forum! :)

arc
Wed, Mar-07-07, 12:26
There are people that treat MS pretty successfully with a gluten free diet. Also, it's critical that you have adequate Vitamin D blood levels:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11115787&dopt=Abstract

http://www.mult-sclerosis.org/VitaminD3.html

Nancy LC
Wed, Mar-07-07, 13:09
I'm new to this forum, but not new to LC. I lost over 100 lbs about five years ago doing LC and in the last year and a half, I have gained 15 (or maybe closer to 20) back. I realized I needed to do something before I returned to my old self. I have been LC again for about a month and have lost around 10 lbs. I'd like to lose about 10 more. The Celiac topic really interest me though. I was diagnosed with Multiple Sclerosis (an auto-immune disease) about seven years ago. But I have noticed that I do better when I am low carbing. I did slip the other night and have some (3 pieces) of thin crust pizza. I immediately noticed a "stuffed full" feeling and was miserable for that night and most of the next day. I'm wondering if I don't have gluten intolerance. And, if the low carb lifestyle isn't helping my MS????
This is my first post...... sorry it was so long.......this is a great forum! :)

You might want to talk to folks at the braintalk message forum. There are people there that were misdiagnosed with MS when what they really had were lesions caused by gluten intolerance. Do a Google search on Braintalk and you'll find them, then look for the gluten intolerance sub-forum, there's also a forum for MS there as well.

Arc is right on target about vit. D and MS. Here's a lecture you might want to view: http://www.insinc.com/onlinetv/directms13oct2005/softvnetplayer.htm

Nancy LC
Wed, Mar-07-07, 14:16
Sorry to spam this thread, but it is a subject I'm very close to.

There's a conversation going on about a new book that is meant for doctors and patients to explain about gluten sensitivity and it's relationship to mental disorders and autoimmune diseases. Someone posted a very interesting quote from the book here, that explains how the whole thing starts off:

http://brain.hastypastry.net/forums/showpost.php?p=75681&postcount=3

deirdra
Fri, Mar-09-07, 11:06
It is interesting that the article says 40% of Americans carry the gene for celiac disease, but most doctors think gluten intolerance is rare.

I have a cast-iron gut, so never had the tell-tale celiac symptoms, but gluten causes me severe respiratory, skin, arthritic & neurological symptoms that I lived with for 35 years until I figured out how to avoid them by avoiding cereal grains, soy & casein. My mother has had rheumatoid arthritis since she was 40 and my father has skin problems & peripheral neuropathy.

The Brits seem to be more open to studying food intolerances, probably because Brits tend to carry the genes (both sides of my family came from the UK). Things like childhood earaches and back acne or other rashes are often found in the gluten intolerant.