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Paulie-M
Fri, May-27-05, 09:42
Having just been told that I have thyroid cancer, I would be interested in hearing from any other forum members who have had this and also know what treatment you received.
Briefly, I hve had thyroid problems for the past 30 years. I had my first surgery when I was 16 to remove nodules. I was told recently that if they were doing my operation today, they would have done a full tyroidectomy and not just taken a piece of the thyroid away. Since 1975, I have had a further 4 operations. I now have no thyroid left, but still make "abnormal nodules"
Due to their position, I have been advised to try radioactive iodine treatment initially and if that isn't successful (and in the past it hasn't been) to try MIBG. If all else fails, they will do surgery, but it is potentially hazardous due to the fact that I have been operated on so many times before and the close proximity to the vocal chords and voicebox.
I would be interested in hearing from anyone who is in or has been in a similar situation.
Paulie-M
Mon, Jun-06-05, 16:44
It was my appointment at the Oncology Department today and this is what happened.
My appointment was at 11am and we actually arrived 15 minutes early (unusual for me :lol: ) Derek and I were shown into a room and had to wait a short time before a doctor came in. She again went through what Prof Lennard had said, just to make sure I knew why I had been referred to them. She then explained what they would do.
On July 12th I have to stop taking my thyroxine. On July 13th, I have to start taking T3 tablets which I have to take 3 times a day. This does the job of the thyroxine, but it is much shorter lasting whic is why you have to take it 3 times daily. I take the T3 for two weeks and then stop. I then wait until August 12th (taking no medication) and go to the hospital for a radioactive iodine capsule. The following day I have a neck scan (which checks to see how the radioactivity is being taken up by the thyroid tissue). The following day, I have a whole body scan. Depending on the results of the rests and wheter the cancer cells are reacting to te radioactive iodine, I will then go into hospital for about 3 days for some radioactive iodine doses. If I have the treatment, I will be radioactive for a few days and the hospital staff can only have minimal contact with me :lol: Visitors have to sit at the other end of the room and not step over a line on the floor. (Just like reporting at immigration when you get off a flight) If, however the radioactive iodine doesn't show that it's doing its job, I will then be given another form of radioactivity.
I did also speak to a girl from the Butterfly Trust swho has had the treatment. She says that one of the downsides is that when you stop taking the thyroxine and T3 you become unbelievingly tired. Still, it has to be done to have the test.
Nancy LC
Mon, Jun-06-05, 16:51
I can't speak to the cancer part, but I have had the RAI treatment for Graves disease. I went to visit a friend who had a geiger counter at work... we played hide-and-seek with me hiding and them looking for me with the geiger counter. They said the chair I sat in was radioactive until the next day.
Make sure that when your cancer treatment is over, you get on a good thyroid replacement treatment. Most doctors are incompetent at this.... including endocrinologists.
Have you been to thyroid.about.com? Its a good site.
Paulie-M
Mon, Jun-06-05, 16:54
Thanks nancy, I'll check it out when I get a minute.
SarahA523
Fri, Jul-01-05, 20:34
I had thyroid cancer about 3ys ago and all I could do was cry but know I am cancer free.I have to body scans every so often and go on salt-free diets.But it gets better in time.
Sandy
Dodger
Fri, Jul-01-05, 21:04
There is a person with thyroid cancer posting at http://forums.roadbikereview.com/showthread.php?t=31265&highlight=iodine+cancer
He is also undergoing the same test.
Paulie-M
Sat, Jul-02-05, 03:47
Mike and Sarah thanks for the posts. It was interesting reading about the guy on the cycling forum. I've been told that I will feel like cr*p that seems to confirm it :rolleyes: Still, hopefully it will be a means to an end.
Thanks again.
meau17
Fri, Jul-22-05, 10:53
I'm new to this board, but this is the first place I have seen people discuss all of the important info. I'm going through the thyroid nodule tests-for the past 8 months. I've had blood tests, ultrasounds and a biopsy. We're still testing and before I have another biopsy my doc is sending me in for an uptake and scan-I'm curious what if any experiences you have had. Did that radioactive substance have any side effects?
Nancy LC
Fri, Jul-22-05, 12:06
Did that radioactive substance have any side effects?
I'd say the biggest side effect is likely to be strip searches when you go out into public and set off one of those super-sensitive radiation moniters they have out there! :p
Paulie-M
Tue, Aug-02-05, 11:41
Did that radioactive substance have any side effects?
I've had the uptake tests done a couple of times previously and they haven't had any adverse side-effects. The first time I was injected with the iodine and the second time I got it in a drink. I hhad to eat a reduced iodine diet for a few days before the tests.
This time, I'll be gettng a radioactive capsule! lets hope I don't start glowing green :lol:
Paulie-M
Fri, Aug-12-05, 04:58
I had my radioactive iodine capsule on Wednesday which I had to swallow whole with a little water. I wasn't allowed to eat or drink anything for 2 hours afterwards. Why is it that when you are told that you are suddenly ravenous and really thirsty? My thyroid (or what is left of it) probably looks something like this now.
http://www.kio3.com/images/radioactive-thyroid.gif
Pretty eh?
I had a neck scan yesterday morning and had to go back again this morning for a whole body scan. The boffins will now analyse the results and I should get a call on Monday afternoon telling me if I am suitable for treatment. If I am, I will go into hospital on August 19th for about 3 days where I will get big doses of the radioactive isotope (R131).
Catch you all later.
Hugs
http://chez.jo.free.fr/signatures/PAULINE.GIF
Paulie-M
Mon, Aug-15-05, 05:21
The hospital rang me at 9.30am this morning. They have looked at my scans and decided that I do not have to go in for treatment on Friday. they didn't exactly say that I wasn't suitable, just that the doctor wanted to review my file and discuss it with some others :rolleyes: In the meantime, I can resume my T4 (Thyroxine) and they will get back to me in " a few weeks for further discussion" :eek: Talk about being left up in the air and not knowing what's happening. This has left me with more questions than answers.
I know I have a bit of thyroid tissue left and that what I have is quite rare and not always suitable for radioactive iodine treatment but they haven't actually ruled it out! I am waiting for my GP to call me back and see if she can find out what's happening at the hospital or offer any suggestions. she has had thyroid cancer herself, so she knows quite a bit about how they do things. I don't really want to be waiting for weeks on end wondering what they are going to do. I feel like I'm back at square one!
I'll be back later when I've had a chance to run things through in my mind a bit.
Hugs
meau17
Tue, Aug-16-05, 08:57
Thanks for all of your input. It is amazing to me how many tests they run and how long it takes to get an answer.
Glad to know that others have weathered the storm and come out on top.
Paulie-M
Sun, Aug-28-05, 14:37
Just an update for you all.
As per my last entry, you know I wasn't able to have the R131 treatment but wasn't given any explanation. I rang my GP who suggested that I contacted the Cancer Centre and asked them for some more info as it wasn't fair to have to wait weeks to find out what was happening. I spoke to a doctor there who said he would check my file and get back to me. he rang me back shortly afterwards and said that they were recommending surgery and were writing to my Prof at the other hospital :rolleyes:
Two days later, I rang the Prof's secretary to see if anything had been received. She said it hadn't but she would ask the Prof to review my file and get back to us. (Why one doctor can't email the other I don't know, instead they use snail mail). I then got a call from my GP asking if I'd heard anything. She had had a letter from the hospital saying that I wasn't suitable for the R131 treatment at this time because I had too much thyroid tissue. This was a surprise to both of us as previously I'd been told I hardly had any left. She did say it was possible that the thyroid had been generating more tissue itself (sneaky bugger!). I am to have surgery and then have the R131 treatment. Unfortunately I'll have to go through the whole withdrawal process again when the time comes :rolleyes: I also got a call from the Prof's secretary who read me a letter out over the phone that was going to be sent out to me. I have to go in on Tuesday and see the Prof to discuss the surgery. I think this will be my 6th thyroid op. I know he didn't want to do surgery initially due to the risks, but maybe now there is more tissue to work on it won't be as hazardous.
Once I know more on Tuesday, I'll post again.
MissScruff
Sun, Aug-28-05, 14:47
My prayers are with you as you go through this.
Enomarb
Sun, Aug-28-05, 19:28
Good luck, Paulie. My friend's DH went through this 6 months ago for pretty big CA of the thyroid. He not only had to have no thyroid replacement post-op, he couldn't have any food with iodine (and very small portions of the only allowed protein, chicken) to deplete his body of iodine too. He had the radioactive stuff, and it seems to have done the trick. Hope your surgery is a success, too-
E
nawchem
Sun, Aug-28-05, 21:15
Paulie I feel so bad for you going through all this. Gee low thyroid is bad enough. Keeping you in my thoughts and prayers.
Paulie-M
Mon, Aug-29-05, 02:09
Thank you for the kind thoughts.
Paulie-M
Wed, Aug-31-05, 16:58
It was hospital day (again) yesterday. I saw my Prof and he explained that the doctor's at the cancer centre had suggested that he do surgery as they felt I had too much thyroid tissue for the R101 (radioactive iodine ) treatment. The danger with treating large areas of tissue with the radiation is that it burns the inside of your neck (similar to sunburn) and in some cases it can cause the windpipe to swell up and you have trouble breathing. This is why they recommended surgery to remove some tissue and then have the R101 treatment. Of course there are dangers associated with the surgery too. As I have had my throat slit open several times previously then there is an increased problem with bleeding and also the proximity of the thyroid to the vocal chords! Some choice eh? :) Anyway, I said I'd have the surgery and I am scheduled to go in on November 9th and have the surgery on the 10th. Following on from the surgery I will have the R101 treatment.
Now I have a date, I feel much better. It's a bit of a pain having to have to come off my T4, start T3 and then come off that for 2 weeks prior to having the R131 treatment, but that is the only way they can do it. My sleep patterns are still awry, hoopefully they sort themselves out soon :yawn:
Nancy LC
Wed, Aug-31-05, 20:14
Well, it must be good to have some things decided though!
notopcos
Sun, Sep-25-05, 19:19
NANCY LC: My name is Amanda and I have Graves'. I am on Methimazole 20mg 3 x day and popanolol 40mg 2 x day. My out take is a 74. They are wanting to do RAI ASAP. I want to put it off cuz I have been TTC. What kind of side effects did you have? Do you know anything about a med called PTU that can be given to replace the methimazole during pregnancy?
Nancy LC
Sun, Sep-25-05, 22:43
What is TTC?
Yes, PTU is a medication that can suppress thyroid. I think there are some others. I don't know how safe any of it is during pregnancy. The issue I would be afraid of with RAI is that being hypothyroid can be really bad on a developing fetus. If they undertreat you that could be bad.
Why are they pushing RAI so hard?
notopcos
Mon, Sep-26-05, 00:21
TTC is Trying To Concieve
They are pushing the RAI because they think the anti-tyroid medication that I'm on, Methimazole, is starting to supress my bone marrow,which could be really bad. I'm on the highest dose they give and it is very TOXIC to my body. So they want me off the Methimazole ASAP. And my symptoms have went crazy. My heart was goin so fast last week that I ended up having chest pain and at the ER with an EKG monitor hooked on me.
notopcos
Mon, Sep-26-05, 00:23
Oh yeah...
My endo also said that it is normal for serious case of Graves' to have an out take of about 49. But my out take was 74!!!!!!!!!!!! So mine can actually prove to be fatal.
Paulie-M
Mon, Sep-26-05, 04:38
Before I had my RAI capsule for the test, they had to do a pregnancy test to make sure I wasn't pregnant otherwise I couldn't have the RAI.
Nancy LC
Mon, Sep-26-05, 12:32
Oh yeah...
My endo also said that it is normal for serious case of Graves' to have an out take of about 49. But my out take was 74!!!!!!!!!!!! So mine can actually prove to be fatal.
Well, here's the difficult choice you have to make. Do you risk trying PTU to get it under control and possibly going into a thyroid storm? Or do you do the RAI and have to deal with the issues it presents for the rest of your life.
One thing I can tell you is your endo will oversimplify life after RAI saying all you have to do is take this little pill and you're fine. The reality is they often underdose you and it takes being an agressive and well-informed patient to get the right post-RAI thyroid replacement. Can you be that sort of advocate for your own health? You'd be surprised how many people don't want to be or perhaps can't be.
But if this is something that is life-threatening, you don't want to get your advice from strangers over the Internet who really don't know all that much.
So, those are the two issues that I encountered in my Graves journey. You might want to use Goggle and look for more information though.
notopcos
Mon, Sep-26-05, 19:58
You may have already answered this, but how is your Graves' being treated?
Paulie-M
Wed, Nov-09-05, 07:48
Well, it is finally here! H day! No, not Humpday (although it is) :confused: , but Hospital Day. I have to ring the ward at lunch time to see what time they want me to go in.
Nothing much else happening here other than getting ready and packing my case :lol: ou see Brenda, I am going on a trip :lol:
Catch you when I get back and once again thanks for the good wishes.
Hugs
http://www.girlfriends-greeting-cards.com/images/large_hospital.jpg
I doubt it will be like this :lol:
Hugs
Nancy LC
Wed, Nov-09-05, 09:48
Good luck!
Oops... looks like a missed a post:
You may have already answered this, but how is your Graves' being treated?
RAI. I was rushed to RAI but that was 20 years ago. If I could do it over I'd try the drugs first, and a gluten free diet, which might have caused the Graves in the first place.
nawchem
Wed, Nov-09-05, 12:04
paulie you are in my prayers girl. Love your cartoon, chocolate and rum IVs what a great idea!
Please catch us up on how the surgery goes.
Nancy
dstartz
Tue, Dec-06-05, 14:32
Paulie,
I'm a thyroid cancer survivor. Had surgery and ablation 10 years ago. I understand completely where you're at and where you'll be going.
You'll stay in my prayers,
Donna (http://dstartz.com/MyStory.htm)
Paulie-M
Tue, Dec-06-05, 17:11
Hi Everyone,
Sorry it has taken a few weeks for me to let you know what has been happening. I had my surgery on November 10th. I was first on the list so at least I didn't have to sit and watch everyone else having their breakfast and lunch when I was "nil by mouth" :lol: This is the first time I have walked to the operating theatre. I had a nurse on one side and my husband on the other. He said it was like marching a prisoner to the firing squad - thanks honey!
The anaesthetic was administered and I was out like a light. The next thing I knew I was waking up in the recovery room. The first thing I did was check if I could still speak. That was one of the main concerns that my surgeon had. I'd been in recovery a few minutes when my surgeon came in and told me that the operation had gone really well and that he was greatly relieved! That made 2 of us :lol: After an hour or so, I was taken back to the ward and my husband came in to see me shortly afterwards. I didn't feel as tired as I have done after previous surgeries and according to my mother, my voice wasn't as squeaky! I didn't have any drains and my wound was very neat and was stitched from the inside. Previously when I've had thyroid surgery the wound was clipped with metal staples :rolleyes:
I was on morphine for a couple of hours and was then put on good old paracetamol. I wasn't in too much pain considering. I was allowed home on the Saturday. My calcium levels had dropped slightly but I was told that I could go home as long as I returned the following day to have a blood test.
My neck was quite swollen for the first week, but is settling down again now. I go back to see my Prof on December 20th. Hopefully I will then get an indication as to when the radioactive iodine treatment will begin.
Thanks for all the good wishes.
I'll keep you posted.
nawchem
Tue, Dec-06-05, 17:16
Well I get worried when you don't post for nearly a month! I'm happy things are looking good for you and you still have your voice. I hope, hope, hope everything will settle and fly right for you thyroid (should I say nonthyroid) wise. That must have been really hard walking into the operating room, shesh.
Wishing you good luck and blessings Paulie!
Nancy LC
Tue, Dec-06-05, 19:06
Congrats, Paulie! I'm happy to hear it went well!
Paulie-M
Wed, Dec-07-05, 14:43
Thanks Nancy.
cathlaur
Sat, Jan-07-06, 09:52
Hey Paulie and the rest of you. I just thought I would come in and say hi.
I had my first thyroid surgery in 2002. I small piece of cancer. They decided to just monitor the second side. Well this past December 8th 2005 I had the remaining side out. 2 nights in the hospital as my calcium had dropped. I got my Path report Monday Jan 2nd 2006. 3 small pieces of Cancer in the remaining side. BIG HONKIN SIGH. So I will have to have Radio Active Iodine done. I am going to use Thyrogen so I dont have to go hypo. They will keep my TSH low and I am now lowcarbing with a vengence. I turn 40 in Feb and just so want to be happy, healthy cancer free and thinner.
If you ever want to chat or email just let me know
Katie
Nancy LC
Sat, Jan-07-06, 15:07
Good luck, Cath! I had RAI 18 years ago for my Graves. Do they tell you about patients setting off radiation monitors nowadays? I have heard of thyroid patients getting strip searched when they set one off! Maybe it is different in Canada.
Paulie-M
Sat, Jan-07-06, 16:48
Hi Cath and Nancy,
I now have an appointment to go to the Cancer Centre on February 6th to see the oncologist. Hopefully they will be able to give me a date to start the changeover to T3 and then coming off all my meds to have the challenge scan.
Here's hoping I don't set any sensor's off anywhere :)
cathlaur
Sun, Jan-08-06, 09:44
Thanks for the kind words. I see a Specialist on the 6th as well. Not sure when my RAI will be scheduled. Hopefully come May I want to push it back as then I can stay in my moms gorgeous trailer and she can come here for several days. That way I won't be near my girls.
We shall see
Good luck at the specialist. Let me know how it goes
Katie
nawchem
Mon, Jan-16-06, 11:20
Wishing you gals good luck and blessings with your health issues. May you have the strength to fight the fight.
Paulie-M
Tue, Feb-21-06, 11:41
Hi Everyone,
Well, tomorrow is "scan day" - at last. I will have been off my thyroid medication for 2 weeks (seems longer I have to say :rolleyes: ) Anyways, I have to be there at 9am to get the radioactive capsule and then go back at 3pm for the scan. I will only be getting a very small dose of radioactivity tomorrow just enough to show on the scan to see if the thyroid area will take up the radioactivity as it has been starved of iodine. I don't have to stay at the hospital and will probably go into town for a wander around and maybe meet Derek for lunch or something.
Sleep-wise not much happening. I can sleep when I don't really want to and vice versa - still I'm not at work so it doesn't matter too much. When I do sleep though I'm having some really weird dreams :confused: The cats seem to know there's something not quite right. When I woke up I had one on either side of my head :lol:.
Hugs
http://www.artie.com/20030908/arg-cat-on-chair-207x165-url.gif
Nancy LC
Tue, Feb-21-06, 11:52
Oh yeah! I had that done with my Graves. Good luck! Its a pretty mundane experience.
nawchem
Tue, Feb-21-06, 12:05
Good luck Paulie,
So what does this test mean?
Nancy LC
Tue, Feb-21-06, 12:55
That test shows how quickly your thyroid sucks up iodine. I think iodine is used to create thyroid. Paulie would know more, I'm sure. It has been 20 years for me since I had mine. But the radiation might stick around in the thyroid and show which parts of the thyroid are the most active. So perhaps it would show "hot-nodules". But I'm not positive about that.
Paulie-M
Tue, Feb-21-06, 14:24
What is radioactive iodine?
This is also called internal radiotherapy. The treatment uses a radioactive form of iodine called iodine 131 or I-131. The radioactive iodine circulates throughout your body in your bloodstream. Thyroid cancer cells will pick up the iodine wherever they are in your body. The radiation in the iodine will then kill the cancer cells.
This is a targeted treatment. It will not affect other body cells as it is only thyroid cells that pick up iodine. The treatment is only suitable for some types of thyroid cancer. It is used for
Follicular (http://www.cancerhelp.org.uk/help/default.asp?page=4223#foll) thyroid cancer
Papillary (http://www.cancerhelp.org.uk/help/default.asp?page=4223#pap) thyroid cancer
Even if you have one of these types of thyroid cancer, this treatment may not be suitable for you. You will be given a test dose to see if your cancer cells pick up iodine. Not all do.
Radioactive iodine treatment is given
After surgery to kill any cancer cells left behind
To treat thyroid cancer that has spread
To treat cancer that has come back after it was first treated
What do I do to prepare for this?
Before you are treated, your doctor will ask you to stop taking thyroid hormone tablets. This will be for 4 weeks if you are taking T4 (thyroxine) or 2 weeks if you are on T3 (tri-iodothyronine). This is because the I-131 works best when the levels of another hormone called TSH (thyroid stimulating hormone) are high. The levels of this hormone in your blood will begin to rise as soon as you stop taking thyroid hormone tablets.
In some situations, you may not be started on thyroid tablets until after surgery and radioactive iodine treatment have been completed.
3 weeks before you have this treatment, you will be asked to start eating a low iodine diet. This is because too much iodine in your body can mean that the treatment does not work so well. You should cut out any food coloured pink with the additive E127. So, do not eat
Spam or salami
Tinned strawberries
Glace cherries
Pink pastries or sweets (look on the labels for E127)
You should also not have
Iodised table salt or sea salt
Cough medicine
Fish and seafood
Vitamin supplements that say they contain iodine
Dairy products contain some iodine, so cut down on eggs, cheese, milk and milk products. You do not have to cut these out altogether but have as little as you can.
What happens when you have the treatment
To have the treatment, you will have to come in to hospital for a few days. You will be looked after in a single room. The treatment will make you slightly radioactive for a few days, so the time that the staff and your visitors spend with you will be limited for their protection. Your sweat and urine will be radioactive during this time. The hospital may have rules about changing your sheets daily and may ask you to flush the toilet more than once after you have used it.
To have the treatment, you are given a drink or capsule or the iodine can be injected into a vein in your arm. Your nurse will ask you not to eat or drink for a couple of hours so that your body can absorb the iodine. After that, you can eat normally. You should try to drink a lot to flush any excess radioactive iodine out of your system.
You will have to stay in your single room for a few days until your radiation levels have fallen. A radiation monitor (Geiger counter) may be used to monitor you or test anything that is taken out of your room. You can bring videos, tapes and books in to keep you entertained. Anything that comes out of the room will be monitored and it may be that some of your possessions are kept on the ward for a couple of days if they have been contaminated. After that time, they will be safe again and will be given back to you.
After your treatment
After a few days, you will have a scan to see if the radiation has dropped to a safer level. Once it has, you will be able to go home. You may be told that you shouldn't be in contact with children or breastfeeding mothers for a short time when you get home. Check this with the staff before you go home. So that you're sure about what you can and can't do and how long you have to take any precautions for. Your nurse will tell you when you can start to take your thyroid tablets again. Usually, this is 3 days after you had your treatment.
dstartz
Tue, Feb-21-06, 16:11
Paulie-M: When I do sleep though I'm having some really weird dreams http://forum.lowcarber.org/images/smilies/confused.gif The only time I have strange dreams, which are mostly nightmares, is when my meds are low. When I had to get off my meds for my ablation and follow-up tests I dreaded that part of it....
Nancy LC: I think iodine is used to create thyroid.Iodine is used by the thyroid to make thyroxine/T4.
Nancy LC
Tue, Feb-21-06, 16:38
The thyroid makes more kinds of T than just T4! There's T1-T7.
dstartz
Tue, Feb-21-06, 17:30
But it doesn't make 'thyroid".
Nancy LC
Tue, Feb-21-06, 19:46
I omitted hormone. Thyroid hormone.
nawchem
Wed, Feb-22-06, 12:01
Thanks Paulie. So this was a test run for you to see if there are any cancer cells left? Then if there are you will continue with the radiation. So, you have had your thyroid totally removed but you still have TSH? So it comes from some other place.
That must be awful not taking your medication. How long until the radiation is over and you can start again?
I wish I was there to give you a big hug for having to go through all this. :there:
Paulie-M
Sat, Feb-25-06, 14:41
Sorry I haven't been around since Wednesday but I have felt really lousy the last couple of days. I didn't wake up until nearly noon on Thursday and had to go into town to get my nails done. I met Derek for a coffee and then we went home. He dragged me into the pub for one drink (which I didn't really want) but I hadn't been in for a while and people were asking how I was.
Getting up early again yesterday to go for the test nearly killed me. I felt so bad that I asked Derek to take me in and bring me home afterwards so I could rest (rather than just kill time in town). He came back to get me 5 hours later for the scan.
I got the "correct" radioactive iodine this time :) It appears that there was a batch fault and that was why they didn't have it on Wednesday. I got this lot in some water. Actually it doesn't taste too bad, considering :lol: They told me that when I went back for the scan they were going to develop it straight away so the doctor could have a look and decide what to do next.
I had the scan and then we sat in the waitng area for about 20 minutes while they processed the results. We were then called down to his office. The thyroglobulin had fallen from 100 before surgery to 1. They showed me a picture where there was a tiny dark bit in the area where my thyroid is/was. That showed that it had taken up some of the radioactive iodine. To try to tell if this was "normal" thyroid tissue or cancerous they asked if I could go across to the RVI (Royal Victoria Infirmary) for an ultrasound. We rushed over there and I had the test. The piece of thyroid is 4.3mm long and appears to be "normal" tissue. Dr Mallick will now decide what to do next. He seems to think that it will still be a good idea to have the radioactive iodine treatment on Tuesday as it will "knock out" any cancer cells (or should do). They will then keep an eye on my thyroglobulin levels just to make sure that thyroid tissue is not regenerating itself. I will find out on Monday exactly what is happening.
I haven't done anything today. I had an awful nights sleep and so just stayed in bed when Derek got up.
We're going out for Sunday lunch tomorrow and we're taking my mother with us. It will make a nice change.
Have a great weekend.
Hugs
http://home.tiscali.be/cartoo/Animal2/fatigue.jpg
Paulie-M
Sat, Jul-08-06, 17:19
OK folks, just a quickie to let you know that I am still in the land of the living :lol: I haven't had the all-clear from the cancer centre but so far the thyroglobulin levels seem to be staying stable :thup:
I did put a lot of weight on during the two times I had to come off the thyroxine and go without prior to the radioactive iodine treatment. I am currently taking 200mcg of levothyroxine daily. I started a meal replacement diet at the beginning of April and have so far lost 46.8 lbs. My weight went on quickly so I want it off quickly too :lol:
These are my latest pictures.
http://forum.lowcarber.org/gallery/files/1/0/3/8/6/08072006004.jpg
http://forum.lowcarber.org/gallery/files/1/0/3/8/6/08072006018.jpg
I am feeling full of life right now and although I still have to go back and forwards to the hospital things are looking up. I go back for my next lot of tests in August. Maybe after 31 years of thyroid problems things are finally looking up :lol:
Hugs
nawchem
Sun, Jul-09-06, 16:17
Wow your beautiful! I'm glad everything is going well and to be full of life is awesome!
Paulie-M
Mon, Aug-14-06, 18:12
I've been back to the cancer centre today for a check-up. They want to do another scan in November and instead of me stopping my medication for 2-3 weeks as I have done previously they are going to give me 2 injections of thyrogen on consecutive days. The scans will then be carried out later in the week.
Has anyone had this treatment and how did it go? Just curious.
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