View Full Version : Was in ER yesturday and never heard of this type of diabietis?
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Pyro Doug
Wed, May-21-03, 04:57
After going into the ER for another injury they tested my
blood glucose since I was diabetic, the doctor told my wife
that I might have what is called riddle Diabetes? has anyone
heard about this or did I not pronounce it correctly?
basically he say's it's when your body can not control the
levels of insulin to the point it's like a roller coaster
ride, which is true one hour it will be 389 sometimes in the
500' then two hours later I'm shaking so bad and feel weak and
faint my BG is 43? so this is why the doctor mentioned this
word, I'm not 100% but I will ask my wife she wrote it down,
but I am certain it was riddle?
anyone heard of this?
Prayers, Doug
Colin Andr
Wed, May-21-03, 11:01
Pyro Doug <"Pyro_Doug <\":)\""@disneyworld.com> wrote:
> After going into the ER for another injury they tested my
> blood glucose since I was diabetic, the doctor told my wife
> that I might have what is called riddle Diabetes? has anyone
> heard about this or did I not pronounce it correctly?
> basically he say's it's when your body can not control the
> levels of insulin to the point it's like a roller coaster
> ride, which is true one hour it will be 389 sometimes in the
> 500' then two hours later I'm shaking so bad and feel weak
> and faint my BG is 43? so this is why the doctor mentioned
> this word, I'm not 100% but I will ask my wife she wrote it
> down, but I am certain it was riddle?
*brittle*.
Colin Percival
Louisejoi
Wed, May-21-03, 11:01
He probably said brittle diabetes. Not an expert on this,
but I believe these are the symptoms of brittle diabetes.
Please don't take this as an insult, I have close family
members who are hearing impaired. Have you and your wife
considered getting your hearing checked? I do know a little
something about hearing loss and it sounds like you may have
a high frequency loss. Hearing loss, especially as we age,
can sneak up on us.
--
Best wishes Louise
Type 2, controlling by diet and exercise
"Pyro Doug" <"Pyro_Doug<\":)\""@disneyworld.com> wrote in
message news:3E8B4E75.96D2EB57@disneyworld.com...
> After going into the ER for another injury they tested my
> blood glucose since I was diabetic, the doctor told my wife
> that I might have what is called riddle Diabetes? has anyone
> heard about this or did I not pronounce it correctly?
> basically he say's it's when your body can not control the
> levels of insulin to the point it's like a roller coaster
> ride, which is true one hour it will be 389 sometimes in the
> 500' then two hours later I'm shaking so bad and feel weak
> and faint my BG is 43? so this is why the doctor mentioned
> this word, I'm not 100% but I will ask my wife she wrote it
> down, but I am certain it was riddle?
>
> anyone heard of this?
>
> Prayers, Doug
Julie Bove
Wed, May-21-03, 11:02
"Pyro Doug" <"Pyro_Doug<\":)\""@disneyworld.com> wrote in
message news:3E8B4E75.96D2EB57@disneyworld.com...
> After going into the ER for another injury they tested my
> blood glucose since I was diabetic, the doctor told my wife
> that I might have what is called riddle Diabetes? has anyone
> heard about this or did I not pronounce it correctly?
> basically he say's it's when your body can not control the
> levels of insulin to the point it's like a roller coaster
> ride, which is true one hour it will be 389 sometimes in the
> 500' then two hours later I'm shaking so bad and feel weak
> and faint my BG is 43? so this is why the doctor mentioned
> this word, I'm not 100% but I will ask my wife she wrote it
> down, but I am certain it was riddle?
>
> anyone heard of this?
"Brittle" is the term.
--
Type 2 http://users.bestweb.net/~jbove/
Annette
Wed, May-21-03, 11:02
"Pyro Doug" <"Pyro_Doug<\":)\""@disneyworld.com> wrote in
message news:3E8B4E75.96D2EB57@disneyworld.com...
> After going into the ER for another injury they tested
> my blood
glucose
> since I was diabetic, the doctor told my wife that I
> might have
what is
> called riddle Diabetes? has anyone heard about this or did I
> not pronounce it correctly? basically he say's it's when
> your body can
not
> control the levels of insulin to the point it's like a
> roller
coaster
> ride, which is true one hour it will be 389 sometimes in
> the 500'
then
> two hours later I'm shaking so bad and feel weak and
> faint my BG
is 43?
> so this is why the doctor mentioned this word, I'm not
> 100% but I
will
> ask my wife she wrote it down, but I am certain it was
> riddle?
>
> anyone heard of this?
>
> Prayers, Doug
>
I agree with the others, "brittle diabetes".
Now that we've established *that*, the next thing is what to
do about it?
Most here, who've had similar problems, recommend fairly low
carbing and frequent snacks of low carb foods of a vegetable
nature. Then you don't get those high spikes, and yet keep a
small trickle of glucose going to prevent the big drops. For
you, eating regularly and avoiding too many high level carbs
is double important.
It's the only way you're going to stop those roller coasters
from getting going. A spike is just going to undo all your
good work, and start the swings again. If you are going to do
something of a very active nature, have a little extra carb
before you start. Don't do the pig out and exercise it off
thing either - that'll just aggravate the problem. Your's is
one case where snacks of a low carb nature, and carefully
balanced, regular meals works best.
I'd recommend starting this regime yesterday!
Annette
Loretta Ei
Wed, May-21-03, 11:02
Doug I havent read any of the responses, but I think that the
doctor must have said brittle diabetes.
Loretta
--
In tribute to the United States of America and the State of
Israel, two bastions of strength in a world filled with strife
and terrorism.
Whitleydlm
Wed, May-21-03, 11:02
"Brittle" diabetes is not a type of diabetes, Colin, it simply
refers to the fact that one's diabetes is out of control. It's
an old term, and not used very often today.
Laurie
Ruth Devin
Wed, May-21-03, 17:02
Brittle is the term. It means that a person's blood sugar is
HARD to control, not just out of control. For a brittle
diabetic, the rules others follow with good results just don't
work. They can be compliant with their medications and food
plan and still not have consistent good control. It is a very
frustrating thing to deal with.
Ruthie RN/Health Coach
Ozgirl
Wed, May-21-03, 22:59
"Annette" <acianthus@bigpond.com> wrote in message news:bag855
> I agree with the others, "brittle diabetes".
>
> Now that we've established *that*, the next thing is what to
> do about it?
>
> Most here, who've had similar problems, recommend fairly low
> carbing and frequent snacks of low carb foods of a vegetable
> nature. Then you don't get those high spikes, and yet keep a
> small trickle of glucose going to prevent the big drops. For
> you, eating regularly and avoiding too many high level carbs
> is double important.
>
> It's the only way you're going to stop those roller coasters
> from getting going. A spike is just going to undo all your
> good work, and start the swings again. If you are going to
> do something of a very active nature, have a little extra
> carb before you start. Don't do the pig out and exercise it
> off thing either - that'll just aggravate the problem.
> Your's is one case where snacks of a low carb nature, and
> carefully balanced, regular meals works best.
>
> I'd recommend starting this regime yesterday!
Well said Annette.
Mack
Tue, May-27-03, 04:59
On Wed, 21 May 2003 08:25:19 GMT, Pyro Doug
<"Pyro_Doug<\":)\""@disneyworld.com> wrote:
>After going into the ER for another injury they tested my
>blood glucose since I was diabetic, the doctor told my wife
>that I might have what is called riddle Diabetes? has anyone
>heard about this or did I not pronounce it correctly?
>basically he say's it's when your body can not control the
>levels of insulin to the point it's like a roller coaster
>ride, which is true one hour it will be 389 sometimes in the
>500' then two hours later I'm shaking so bad and feel weak
>and faint my BG is 43? so this is why the doctor mentioned
>this word, I'm not 100% but I will ask my wife she wrote it
>down, but I am certain it was riddle?
>
>anyone heard of this?
>
>Prayers, Doug
try "brittle" diabetes.
Mack type 1 since 1975 http://www.alt-support-diabetes.org
Mack
Tue, May-27-03, 04:59
On 21 May 2003 14:15:12 GMT, whitleydlm@aol.com
(Whitleydlm) wrote:
>"Brittle" diabetes is not a type of diabetes, Colin, it
>simply refers to the fact that one's diabetes is out of
>control. It's an old term, and not used very often today.
>
>Laurie
>
it refers to those of us, who despite all we do, still have
great difficulty in maintaining control. and it is still
used very widely today.
Mack type 1 since 1975 http://www.alt-support-diabetes.org
Sarah
Thu, May-29-03, 23:00
On 27 May 2003 22:59:14 GMT, whitleydlm@aol.com
(Whitleydlm) wrote:
>http://www.childrenwithdiabetes.com/dteam/1996-11/d_0d_1b3.h-
>tm
>
>Question: What is "brittle diabetes?" The person who has it
>is 49, 202 pounds, male, and has had diabetes for five years.
>He was recently diagnosed with Brittle Diabetes. I would like
>to know what it is.
>
>Answer:
>
>Brittle diabetes is a rather old fashioned term that used to
>be applied to cases of both Type 2 and Type 1 diabetes in
>which there were unpredictable and inexplicable fluctuations
>of blood or urine sugars and where acidosis, often requiring
>hospitalisation, was frequent. It was not a specific diabetes
>variant and as the importance of diabetes education, the
>availability of home blood glucose monitoring, the
>understanding of factors other than diet in blood sugar
>levels and the important role of psychosocial factors in
>maintaining control became better understood the term fell
>into disuse. Nowadays poor control, as defined by a high A1c
>level, calls for a much more specific definition as to where
>the problem lies.
>
>For further comments, please look at a previous question.
>
>DO'B
>
>Original posting 2 Nov 96
>
I know one person with brittle diabetes. He tries to keep his
BG at 7 or higher, since he can have a 4 or 5 point drop with
no warning and for no apparent reason. He has had every test
that the doctors can throw at him and they are all baffled.
They have eventually said it is "brittle diabetes" and left
it at that.
He has ended up devising his own conditions and BG levels at
which he is relatively safe, for example pre-sleep BG has to
be greater than 12 and he must have a carb snack. Every time
he moves to a new place (and hence new doc) the doctors are
horrified and tell him he must lower his BG. He's got many,
many examples showing he can go from 10 to 2 within 30 min
while fast asleep. He usually wakes up with a FBG of 10 or so
on his regime, but he prefers this to a couple of emergency
hospital admissions a month.
One thing that does help is changing the type of insulin he is
on every few years, he seems to have less abrupt changes the
newer the insulin. He's been diabetic for about 50 years now,
and is running out of new insulins to try.
Sarah
--
Cheshire, UK Type 1 dx 06/01/03 Humalog + Lantus (Rosie the
chinchilla Type 2 dx 12/03/03 beef lente)
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